We call and they make a virtual appt for this morning. But yesterday I saw some rash on Ted's forehead and some blisters, so I tell him I think he has shingles. I look some things up on line and then I know he has shingles. I tell him we need to call the bone marrow clinic. They returned our call and told Ted to get to ER.
I called my daughter Angie and she comes to take Ted to ER. Tells me to stay home I can't go as they will not let me in the hospital . I tell her, I have to put my coat on to help you get Ted in the car, he is a weak person right now. Sure enough, his legs about folded when he was getting in her car.
Later, I call the hospital, they say Ted may go to Indianapolis , so an eye specialist can check his left eye as they think the shingles are in his eye. I wait for calls. I call the hospital. They say Ted has been taken to Indy. I get no calls from either hospital. So this morning I call Ted. He is going thru tests and would call me back. No calls. You can't go to the hospital , you will not get any calls from the hospital staff, I am angry. Why? Just one staffer could give a short call. So when they ask for a review, I plan on giving them one. I try to be kind and nice and understanding....but I am ready to snap.
All I know is Ted has shingles, I diagnosed that myself. One dr said he was low on sodium and was drinking too much water, after Ted told him he drank 3 -16 ounce bottles of water a day and a coffee. Now I say pneumonia needs lots of liquids, plus the steroids, he had for helping take care of pneumonia, helped bring on the shingles. What do we do?
Please send up some prayers for Ted. Thank you so much. XO
I'm so very sorry that these times make it so hard to care for our loved ones. Take care of yourself so you will be able to care for him when he comes home. Hopefully that will be soon. Do please keep us posted! xo
ReplyDeleteThank you Terri. I am hoping Ted's hospital stay is productive. That he will be healing and in much better shape when he gets home. Blessings to you, stay safe, xoxo, Susie
DeleteI have just said a prayer for him, and for peace for you. I am so sorry! How far are you from Indianapolis? Please keep us updated. But it is good they sent him to a better hospital.
ReplyDeleteGinny, Our hospital years ago, could take care of about any illness. Now they are more or less a teaching facility. Thankful there' things that can be done here. I am hoping Ted is truly getting more that just meds and IV's. I have not heard anything about the eye specialist yet. It's hair tearing for me so much of the time. Blessings, be safe. xoxo, Susie
DeleteI am so sorry. It is just one thing after another!!! I've been praying each morning for Ted and you too.
ReplyDeleteThank you honey. We are grateful for the prayers. Ted just seems to not be able to get a break these days. It's rough at times. I want Ted to have some peace from everyday being a fight. At least the nurses will look in on him often. Blessings, xoxo, Susie
DeleteYou better believe I am praying for your Teddy! And my goodness, you need to vent, my friend!! Hope all will be better soon. HUGS to you!!! xxx
ReplyDeleteKay, Thank you for your prayers. I did not know till yesterday afternoon where Ted really was. They said Methodist. But as I was speaking to Ted on his cell phone, I heard a nurse say he was at University Hospital. I said they told me Methodist, she said he was transported the Metho. ER and then brought to University.(because Univers.hospital has no ER) Oh so many places for exposure, is what I am thinking. Gaaa. I am praying Ted is truly being helped and that he can get back home without getting Covid. Blessings to you and yours, be safe. xoxo, Susie
DeleteI'm so sorry! Keeping you both in my prayers!
ReplyDeleteThank you Jan. I hope you are doing well and are safe. I am not sure how long Ted will be gone, but hope he gets back here in better shape. Blessings, xoxo, Susie
DeletePrayers. I have lived in Indy three years near daughter. Not impressed with some of medical exc my doc office. Moving to Florida after vaccine to be near son. Divide my time. Prayers prayers prayers. This is horrible for you.
ReplyDeleteThank you Brenda. I just want all Ted's drs to communicate with each other....and in this computer age it should be easy...but I am thinking pony express would be faster. Hope you do well with your moves. Be safe. Blessings, xoxo, Susie
DeleteOh Susie, I can see why you had to vent. This is awful. It was so smart of you to diagnose Ted's symptoms and having shingles. I hear that's awful. Please keep us informed, and I'm saying a prayer right now for Ted and you. You are going through so much, Susie. Thinking about you, dear friend.
ReplyDelete~Sheri
Sheri, By now I should just say to Ted"let's go to ER." He just puts it off almost too long. Praying he gets back home in better shape. I want to see him well. He would not have to do back flips, just be well and healthy. Two of my sister have had shigles a few years back but I never saw the rash. But honestly seeing some of the sample picture on line I could tell for sure Ted had Shingles. Blessings to you sweet girl, stay safe. xoxo,love, Susie
DeleteI'm so sorry to read about all what you are going through, Susie. (((HUGS))) It's hard, I know, to be without any news or information, but, I imagine the hospital staff are run off their feet right now. At least Ted was able to be entered; over here, our hospitals are all out of beds! Several hospitals are not even admitting any new patients and ambulances are being turned away! I hope you are able to get some news about Ted, tomorrow. In the meantime, try to take care of yourself.
ReplyDeleteOh Honey, I know it's pure hell in some cities...I fear too many celebrations and marchings will make it worse too. I know that Ted was covid free when he was here and I pray he comes back home that way. Also hope the specialist is truly helping Ted . I spoke with Ted on his cell and he was not up to talking...but that is how I get some info. Blessings to you, be safe. xoxo, Susie
DeleteOh-dear...sending love and Prayers that things will work out for you Susie and Ted. Best Wishes. KEV.
ReplyDeleteThank you Kev. I am praying Ted will be better when he returns home and will not have been exposed to Covid . We have followed rules and with having to go to hospitals where the germs are, it's scary. Blessings to you, stay safe. xoxo, Susie
DeleteDang it, Ted and YOU can't catch a break. I will pray for Ted to get the care he needs and return home in better health. I also pray that SOMEONE will give you the information about his progress, you deserve to know. Sending HUGS and PRAYERS your way!
ReplyDeleteThank you Theresa. I talked with Ted this morning...he's kind of out of it..so I told him to rest and he could call me when he is rested. I will call the hospital myself after the lunch. Blessings, stay safe. xoxo, Susie
DeleteSherry is having the phone call problem and it is just her brother. She said she would be climbing walls if it were her husband. Love and prayers from here.
ReplyDeleteYOU breathe deep, God is good.
Love from Florida
Sherry & jack
Thank you Jack and Sherry. I had a headache all day yesterday...stress. I have to calm down. So I spoke to Ted and he is all wore out and confused...so I told him to get his rest and I will call the hospital myself. Blessings, stay safe. xoxo, Susie
DeleteSo sorry to hear about this triple whammy on his health. Its not that you already didn't have enough to deal with and now this. I will definitely be praying. It's terrible not to know what's going on and hope they get better at communication too.
ReplyDeleteThank you so much for the prayers. Not knowing is maddening at times. So much going on at once is stressful too. And the virus lurking around makes it worse. Blessings to you, be safe. xoxo, Susie
DeleteOh, Susie! Sending prayers for Ted and for you! Such a difficult time! Hugs and love! - xoxo
ReplyDeleteThank you Nellie. I have wondered about you since that storm went thru your area. Prayed for you too. I am grateful for your kind prayers and words. One day I will be ready for a vacation. I am calling the hospital this afternoon. Blessings, xoxo,love you too my friend, Susie
DeletePrayers for you both Susie, but the hardest place to be in, is in the caregiver's place. Sometimes I say to God, "A woman can take just so much" He never gives us as more then we can handle. Take care of yourself Susie and put Ted in God's hands he knows what is best for him. That is so very hard to do, I am in the same place with JP's health issues. Hard to watch JP's health fail from where he was to where he is now. God will give both you and Ted the spiritual strength to get through this.....He knows and holds both you and Ted in the palm of his hand. Blessings Susie.
ReplyDeleteThank you Louise. It is a tough job, being caregiver. I never want to do this again. I keep thinking just get thru this day and things will get better...then more bad days and I am beginning to wear down. I pray all the time. Even if I wake up in the night, I pray. Oh I have to let God help us. Some times, I feel the need to tell Him, I am not Job. Blessings to you and JP. You are in my prayers. xoxo, Susie
DeleteOh, Susie!! I'm with you all the way on that uncommnication! We know they need every spare hand and minute for patient care, but we just wait and hope to hear. I'm good on the phone and have a LOT of free time---I'd call a list of families all day long for them if they'd let me. It's so scary and frustrating to be hoping to hear for days. My prayers and thoughts for you and Ted for a quick recovery and return home.
ReplyDeleteHi Racheld. I spoke to Ted this morning. He is in pain and getting meds thru the IV's and salve on his face and creams in the eye. He is kind of out of it too...like confused. So I told him to rest and I am calling the hospital this afternoon. Blessings to you, xoxo, Susie
DeleteOh dear, I just prayed for both of you. My heart goes out to you and am so sorry for the difficulties. It must be so hard to not be there and not get any information too.
ReplyDeleteHugs and continued prayers
Sue
Thank you Sue. I have had a tiring week. I thank you for the prayers. Blessings, xoxo, Susie
DeletePraying for you both!
ReplyDeleteMy husband had shingles a while back. Not fun.
Thank you Sandi, for your kind prayers. I will be getting a shingles shot as soon as the drs. tell Ted it's safe. He had to get his baby shots finished from getting the bone marrow transplant. I have to watch everything I do too...because of of his compromised immune system. Blessings, xoxo, Susie
DeleteWe are praying every day! What a lot Ted has had to endure. I hope and pray he gets some relief and heals. Take care of yourself my friend. Sweet hugs, Diane
ReplyDeleteThank you and Ron. Your prayers are welcomed . We need lots of them...it surely seems. I will know more this coming week of Ted's health. Blessings, xoxo, love, Susie
DeletePraying for you both, bless him he's having an awful time & it's such a worry when you can't be with him. I don't know whether your hospitals are in the same state as ours but staff are absolutely run off their feet as they are full to bursting with the Covid patients. They are really suffering. Take care.x
ReplyDeleteThank you Winifred. Yes, I think all the hospitals are so busy. Doing all they can. I didn't need a blow by blow of Ted's day...but a kind word for hope can help my stress level. I thank each person I speak with and tell them I appreciate their kindness and help. Blessings, be safe. xoxo, Susie
DeleteGod bless your sweet heart!! I know this must be hell for you and Ted both! I am praying he gets the treatment he needs and that you get some rest. I can't even imagine how worn out you must be. It just keeps coming and thankfully each issue can be addressed and treated and he will return home in much better shape than when he left. Love you, Susie Q. Louis Dean says to tell you he is praying for you, too.
ReplyDeleteLinda , I will forever be grateful to all for their kind prayers and wishes. This journey is wearing us out. Ted will be having some tests soon to see what is going on in his lungs...the hospital doesn't see pneumonia in his lungs on their x-rays. I thank you and LD for keep us on your prayer list. Blessings to you both, xoxo,love, Susie
DeleteHow awful! I will be praying for Ted and you too. Hope you find out something soon.
ReplyDeleteThank you Kathy. That is what we need prayers and tests to pin point his major problems. Blessings, xoxo, Susie
DeleteOh Susie, this is just terrible. I've had shingles on the head before and I know the misery Ted is going through -- well, maybe not, because I didn't have the other complications on top of it. You are absolutely right to be calling and getting information and yes, that goes in a review (whether they ask you for one or not.) I know you are terribly worried. Know that prayers are coming from Michigan and I daresay, from across the country. Hang in there, my friend.
ReplyDeleteThank you jeanie. Your prayers mean so much. I count on the drs and nurses to care for Ted. I know they are overwhelmed with cases . Ted is doing better after the shingles meds were changed and he is getting lung tests. Blessings, be safe, xoxo, Susie
DeletePraying for healing and peace for Ted and comfort for you, dear Susie.
ReplyDeleteThank you honey. It's been a crazy week. I do not know much of what it happening. But I know that Ted is in a room with better protection of his lungs. Bless you, xoxo, Susie
DeleteSusie my heart is really going out to you. You have a right to be enraged about this. xxx
ReplyDeleteThank you Rain. I have been able to talk with the dr a couple times. He has been getting the tests and the lung drs. involved. They do not see pneumonia in Ted's x-rays. So he will have further testing. His shingles are a bit better from the meds they used. Bless you, be safe. xoxo, Susie
DeleteI'm so sorry for you both. Hopefully you'll had some contact with the hospital by now. It's not easy to have to wait for a call that never comes. Take care. Love Elzie
ReplyDeleteThank you. It's been a tough time. But learning some new things about Ted's health. Blessings, xoxo, Susie
DeleteWaiting is just awful and I would imagine it is really difficult for those who are taking care of the sick. I'm sure they wish they could do better. They just dont know how special your Ted is to you and shingles are just awful. Love from MI.
ReplyDeletePeggy, It's hard to wait so very long and you wonder why. I know all the staff is busy. But I needed their understanding too. Prayers just keep me going and going. .I miss my Teddy being right here with me. Blessings, xoxo, Susie
DeleteHi,
ReplyDeleteHow are things my dear friend? I am praying.
Love, Carla
Thank you Carla. I have had your family in my prayers . Ted and I are lonesome for each other...but we know he needs this hospital time. I just pray they can help him get on the right path. Blessings, xoxo,love, Susie
DeleteOh Susie..so sorry to hear all this..These times make it hard to be a patient or a loved one..Shingles is bad when it affects ones eye..but I guess you know that..Hope they are nipping it in the bud..I feel badly for you..stay strong..
ReplyDeleteVery hard days these days. Praying for your husband and for you.
ReplyDeleteSusie I am so sorry you are going through this. They should have assigned a person to keep you filled in. I am sorry they are dropping the ball. I hope that Ted will get good care. Shingles is so painful and can go on for so long so I hope they can do something to ease the pain for him. I hope too that if they are in his eye they can help him with that. Stay strong. Prayers. xoxo Kris
ReplyDeleteOh Susie, I am so sorry. I can't believe the hospitals, if they will not let you in to be with your loved one, then they need to have an up date emailed each time they do a procedure and each time the doctor comes in. Know that you and Ted are in my prayers.
ReplyDeleteGod bless you both.
I wish there was something more that I could do. My heart goes out to you sweet friend.