Saturday, August 10, 2019

Thank You, Thank You !!!!!

 My daughter Kathy's rose does not  give a lot of blooms at once but surprises me with one every now and then, making me smile.  I need to give this rose more love.

 Catching some sunsets lately, trying to hold onto each day as long as I can.
 I have to show the flowering pots in our town. They make them every year with wave petunias and other annuals. They are watered as needed thru the week. Every business has one or two out front. They are all over town.
Oh yes, school started this week. I miss the bus picking the boy next door up...but he is into his 3rd year of college now.  Wow, those years went way too quickly.
   This has been a good week and I  know in my heart I have all of you to thank for it.   So thank you dear friends, from the bottom of our hearts. We are so very grateful for all of you.
    Friday was Ted's official 100th day. A great day in bone marrow transplants.Ted got his maintenance chemo every day this week. Granddaughter, Sierra, drove him there everyday but yesterday. Such a sweetheart to help us like she does. Ted drove himself yesterday, we went the back interstate speed drive for us.  Ted received his labs, chemo I.V. , then the Hickman port was removed. Ted's counts are good. The doctor ( Dr. Luke Akard), said Ted can eat what he wants, go where he wants and do as much as he possibly can. No golfing for a week and no swimming. No mowing, or being in any place that could be dirty , like basements and attics. Not to be outdoors if there's construction, for fear of dust and dirt.....which can hold molds and harmful things.  We go back in two weeks for a follow up and blood work. Ted may be able to get his next maintenance chemo in Noblesville a town that is so much closer and no interstate driving involved. That's a big plus for me, as I get to anxious in heavy traffic. :)
   Bless all of you.  I will always remember the prayers , well wishes, and kind words . Love you so much. XO

Monday, July 29, 2019

We Got Rain....

 Remember  this spring, when we thought it would never stop raining. Then it did and that was getting into draught conditions...well here in central Indiana.  The flowers did well for a good long time.
  All the lilies are so tall and pretty.

 You can see the wet driveway. I just filled the pond by the shop again yesterday , as it was drying up .
 Got some black eyed susans growing now.They love water, so since it hasn't rain till now, they are not as thick.
   This morning early , Ted drove us to Indy, for his drs' appt. They did lower one med and took away another. But then made appointments for everyday next week for more maintenance chemo. Now when Ted went into the hospital for his bone marrow transplant, they gave us a book ..a book that tells you what will take place. Big chemo, then radiation, then the bone marrow transplant. The more I read the book the scarier it seemed.
  Now the doctor says Ted will get a week of maintenance chemo every month for a year. I have read that book over and over and no where in it does it mention this chemo maintenance. I don't mind saying it upsets me. I just get stressed every time we go there and knowing this will happen every month really makes me sick to my tummy. Ted is okay with it, what can we do...too far into this to quit .
  I thank each and everyone of you for your prayers and good wishes. They have surely helped us get this far. God hears you and we are grateful. Bless you. XO

Monday, July 22, 2019

It's Cooler....

  This is our clematis at it's best. This one is my mom's all time favorite color.
  The hostas are looking okay. This used to be one hosta and I cut the root ball into five sections so I could surround this tree.
 I love these lilies, so why haven't I bought more or divided this one. to make more? LOL
Pachysandra, what can I tell you about this amazingly hardy plant. We have lived out here in farm country for 14 years....I bought a flat of this plant when we lived in town and had it growing everywhere in that yard . So I dug some up to bring out here and have enough for twenty flats or more. I have given some to my daughters and neighbors.  It's the plant with the yellow flowers.
  We have had some of the hottest weather lately, it rained yesterday evening and now the humidity has dropped. It will be pleasant the next few days. Hooray.
  Ted had a Dr.'s appointment today. His labs were good, but a bit lower on his platelets from the maintenance chemo he had on the 8th thru the 12th. The dr lowered some of his meds. and stopped one. Next week another med will be stopped also.  Eighteen more days till that big 100 day mark.  Praying Ted will not have any graft verses host disease. One of the thing that could happen from a bone marrow transplant. Please keep him in your good thoughts and prayers. Thank you and Bless you. XO

Tuesday, July 16, 2019

A Brand New Week....

 Still showing old photos for a few weeks, till my grandson can get here.  Ted had a Dr's appointment yesterday at the Bone Marrow clinic. He got good news from the dr. His hemoglobin was 11, higher than it's been since Ted's was diagnosed . He says he feels great, although I can tell his energy is still low. This could be from the maintenance chemo. .
 We will celebrate Ted's birthday this week. He is happy to be celebrating. Will want to eat at Red Lobster, one of his favorite places. Yes, he will ask for extra biscuits to bring home. LOL  The dr told him the medicines will change up as his 100 day mark arrives. Twenty-four more days. I ask about the significance of the 100 day mark, the dr said well if we are going to lose someone it will usually be in the first 30 to 60 days...and we have found that 100 days is a good place to get to .  Ted's blood pressure goes up and down some what. I take it twice a day. That will change when he is off some of the meds. Thank goodness.
   Hope all of you are enjoying summer. We have had the hot days, rain, sunshine.....and more rain coming our way from Barry (hurricane). Bless you. XO

Thursday, July 11, 2019

Busy Week....

  I have been trying to enjoy my summer days. Although this is Ted's week of chemo maintenance. Our granddaughter Sierra has been taking Ted to his clinic appointments and giving me a rest . Bless her heart, she knows the traffic just makes me nuts. LOL
  Ted's chemo has been in a shot form and given in his tummy. Which he seems to be fine with. He says it never hurts and he is still feeling better each days.  I can see a bit of energy each morning and it does my heart so much good.
 Monday morning will be his Dr. appointment. The chemo may show a drop in some of his labs, like white blood cells, platelets and hemoglobin.
 In a couple weeks,my granddaughter's husband Mark, will come help me with my computer. I know he is always busy, but he said he would make time to help. What a sweetheart .  I will have him help me find my pictures or at least show me how I can load from my phone.
  I hope all of you are safe and enjoying some of this summer weather. There are some really hot temps on the weather maps. Yikes, I am not good in such heat. Zaps my energy, especially if I work out in it. Like when I weed whacked this week. I got a small battery powered whacker. One I can handle, but the heat and as thick as the weeds were getting, my arms still felt wore out. LOL. I turning into a cupcake, no more grit. :(
  Blessings to all of you and thank you for the good wishes and prayers. XOXO

Saturday, July 6, 2019

Great Time.....

 This is an old picture from a previous 4th of July. Sister Pam, me , daughters Angie and Liz.
 This is Ted and I with great grandson Max when he was a baby. He is 3 1/2 now. So these pictures are 3 years old.  I still have not found any more pictures . Have not tried to load any from my camera.  Scared of what might happen.
    We had a great fourth at my daughter Angie's  house. 58 people where there running in and out and playing in the yard and eating in the house and garage. The big kids played corn hole, the little ones played in the wading pool outside and lots of us right there playing with them.  Then there was lego building inside, coloring books and many other toys.
  My brother George and his wife Sally came all the way from Alabama to join us. We laughed, told stories on one another . The fellows told their golf and fishing stories.  Recipes were exchanged among the women.
  We had so much fun  and good foods.  But mostly we had family love to share. I am not sure if big brother will come all the way from Alabama  again.
 Ted did very well on the 4th and yesterday. No one was sick, so he could take his mask off. limited his hugs. Hoping the weekend will be good. Monday is the start of a week of chemo infusions.  Please keep us in your prayers. I am so very grateful to all of you. XO

Tuesday, July 2, 2019

Now What ????

 I know I must be the unluckiest person ever at this time. Just got my computer back . A power gltch took out the hard drive. A new one is in and so is window's 10 latest upgrade. Now I have no addresses, no windows email, no pictures , except for some old ones. I just had about an hour on the phones with the Geek support group....this after bringing my computer home from the Kokomo store. Gaaa...why?
  Ted had an appointment yesterday at the bone marrow clinic. Next week is a week of driving over an hour each way, Ted can get chemo infusions for maintenance. We were not expecting this just yet.  His counts go up and down. His kidneys did perfect for a week without the cyclosporine. ..Now he is back on that med.  Please keep us in your prayers. Thank you so much.
 We will be going to a family outing at my daughter Angie's for the 4th. It will be good to get hugs and see the little ones. I miss them all. Ted has his days. One day good ,next day feeling low. The dr. says it's normal what he is going thru.
   Wishing all of you lots of fun family moments this week. Bless you. XO

Thursday, June 13, 2019

The Happenings Thursday....

  Thursday started nice enough.  Ted had an appointment with his bone marrow doctor. His labs showed that his counts are in the normal range....hooray for that. One test showed he had to be taken off one of the water pills for a few days.  He will have a lab work here in Tipton and the results will be faxed to Dr. Tandra at the bone marrow clinic.  They will call to let us know when to resume that water pill. Ted's hemoglobin is 8.8 , it should be between 13 and 17.  We feel things are  looking up.
  Last week there was a free ice cream fair for cancer survivors. The nurse said Ted's doctor went to the little treat wagon twice. LOL.
  When my daughter Liz sent this picture to Ted and I , we talked about it with pride. It's our granddaughter Emma at her job. She works at a little sandwich shop in her town.
  This picture did indeed make me cry. Emma , my little crafting buddy, baking pal, over night slumber girl, is giving a thumbs up pose.....she just got her beginner's permit to learn to drive.  Where did the time go?  I feel time is cruel in many ways. We can never  get it back. Please hang on to your children and grandchildren tightly....they are growing up .
 Oh yes, this picture made me almost want to cry...but what can one do??? Our AC gave out  and with Ted having a bone marrow transplant we are not allowed to use fans...we have to have AC, so this is the new unit put in two days ago.
  Our household luck is as bad as it can get. New roof, new water heater, a furnace repair in the month of Feb. and now a new AC unit. The household account is running out.
   We are just so thankful to all of  you for your healing prayers. I will keep you posted about what Ted's next lab work shows. He is still low on energy, but the lab counts should start to change that soon. Sure hope so. Thank you everyone for the prayers. Blessings.  XO

Monday, June 10, 2019

Better Days....

  Ted and I are home. We got to come home on Friday afternoon, right after Ted's doctor's appointment.  His  next appointment will be this Wednesday.  His lab numbers were decent and the doctor thought he was ahead of everything by a week, that's great.
 I went to the local dollar store and picked up this cute box that says it all, right on top.
 It holds all of Ted's meds now. The drs say his meds will change weekly or monthly.
 This is what our dining table looks like till I can get more organized. To think I truly used to be a very well organized person...not anymore. Yikes.
 My daughters have come to visit this weekend and each has brought food items for us. Today Liz brought an awesome lasagna. We divided it into small containers to freeze. As Ted can not eat left overs that would be older than one day.  He has had banana bread, his favorite from Karen (Liz's twin) Ted is doing well with his meds and his eating...but lacks energy. He is starting to walk around the house on the inside , just to get a bit of exercise. That's a start.
 The catalpa tree has bloomed and is dropping it's blossoms like snow.
 The clematis has bloomed also and looking very pretty.
 Even the honeysuckle has started to grow again.  thought it had died out last year.  It's been raining the past two days and now this afternoon the skies are clearing. Looks  pretty with all the trees leafed out and everything so green.
  I want to thank all of you for your good wishes and prayers for us. We are thankful to all. May you each be blessed. XO

Saturday, June 1, 2019

Weekend Pass....

  Ted was allowed a weekend pass home. He was very happy about that. I see glimpses of energy here and there, it does last long at this time.
  This s the shuttle that comes for us at the apartment near the hospital and takes us to appointments.  Such a handy transportation.
  This is a poster at the bone marrow clinic in the hospital. The picture is of  Dr.Anand Tandra, Ted's doctor. He is one of four in this group. All are so smart and truly caring.
  When Ted has to take more pills than ever in his life and the pill holders are not near big enough. So I just used a big picnic paper plate to hold his meds for each day. There's morning, afternoon, evening and bedtime. I have read named the sections a couple times.  I will have to get a bigger holder. This is time consuming and that is because I double check . All the long twisted names of meds, confusing...and some drs. use the product name .
 Near the last two days of Ted's hospital stay after a big rain, there was a rainbow ...I took it as a sign of great hope.
 Then that evening there was a beautiful full moon. A day later, we  transferred to the out of hospital housing. So near by and helpful.  This is all paid for by donations. I think this will be one of our favorite charities.
 This is our other one, Cystic Fibrous Foundation. Today is a walk for our great grandson Luke. I was sure hoping to be able to join everyone, but it just didn't work out.  Luke's aunt made up T-shirts to help raise money. It did raise hundreds of dollars. How wonderful.  Please pray for the children.
   Ted will have two more appointments this coming week. Then I think we will be allowed to return home . He will have weekly appointments, then it will be monthly.  Ted has done amazingly well with this transplant. It is a long process ...lots of tests and meds. He has to shower daily , take care of his dental hygiene, and always be on the look out for anything different occurring with his body. The doctors are happy with the results. I am so thankful to all of you for prayers and well wishes. Thankful God has shown us mercy and love.  XO

Wednesday, May 15, 2019

What's Been Happening....

  This is the board they put Ted's counts on. He got platelets today.  The white blood cells are going up a wee bit.
 Ted ran the clippers over his head today,, his hair was starting to fall out.  I kind of thought he would not have to do this.
  Got a sweet card from Layla.  Her mommy makes little dash letters and lets Layla draw over them . So sweet.
  I missed the 5th grade class picnic this year. I felt sad about that, I been helping Angie with this for years.  Here's the class on a climbing rock in the park.
  My granddaughter Lynzie, here with Luke (g.grandson) and Angie...helped out . She brought her boys, Luke  and  Max, and also brought Layla. They had a chilly but fun day.
  On Mother's day , my daughter Kathy picked me up to go to lunch and then we walked and saw 4 great horned owls. You may be able to make out two of them , sorry not such a good photo. But it was exciting to see them.
 This is what I see while in the hospital with Ted.....long lines of traffic backed up on hwy 65.  Hope all those people made a pit stop before this.
   Ted will be going to the off site place soon. For about 2 to 3 weeks. With two or three appts back to the hospital each week. Praying no emergency runs at all.
  I am so thankful for my grandson staying at the house and the neighbors helping with the yard.  There's a lot to keeping things up. I am thanking all of you for your wonderful prayers and good thoughts.  There are times when I think I can not take another day of this....but some how some way I get just enough push to continue. I can almost see the good side of this journey. Bless all of you. XO

Tuesday, May 7, 2019

Bone Marrow Transplant....

  This is the bag of stem cells and red blood cells, over 1100 cc.'s.  It was delayed  because of the Ted got started at 4:40 am  instead of 3:00 am. We do not know the donor. It was a 26 year old man, from Europe. We are so very grateful for his kindness.  Males are preferred, ages 18 to 44 years.
  Ted decided to just try to sleep. He had had five days of chemo and a radiation the day before.
 He gives his  "V"on to Victory sign. He has stayed positive which is truly helping.
 I have to wear a mask and gloves while in the room...even sleeping in these. For I stay with him in his room.
  This is his blood works. W=white cells really low now. H=hemoglobin really at a good number still. P=platelets, which is dropping . The drs. say Ted is on track and yet some think he is doing much better than most.
 I came home for a couple days to do laundry, make household payments, pay the roofer as he did finish while I was gone.  I took the longest hottest shower I could stand when I got home. Those G.I. baths are not enough. (baby wipes) I came home to spring . The crabapple has bloomed.
 The flowering plum bush. too.
 The neighbor's dogwood tree is so pretty. The apple and pear trees also.
 My lilacs are the best they have ever been.

 The little red Japanese maple looks good too. The skies are just wonderful the past three days.
 Ted's son sent this picture to me. This is Ted today. Heath and his wife Nowal went to spend the day with Ted. The dr. told Ted today he was doing very well. He looks very good here. , he had just walked the halls. He has to wear a mask and gloves when he goes into the halls.
   Thank you Nana Diana for your prayer requests. We are so very grateful to all who have prayed for Ted. You mean the world to us. Please keep helping us thru this . Thank you. XO