Friday, October 11, 2019
This is an up date on Ted. We left at 8 on Tuesday and got back home at 3:45 , drove directly to CVS. When we arrived at the hospital,Ted had a pulmonary test in the heart clinic part of Franciscan Hosp. , then we drove to the bone marrow corner of the hospital, Franciscan is a huge medical complex. Then Ted was checked out by the N.P. , the nurses and Dr. Akard. He had vitals taken, lab work, and then had the breathing treatment.
The doctor ordered new meds and we go back to the clinic next week. The newer meds seem to be helping Ted . He seems to have more pep. ...alertness, I guess. He has no energy to do more than walk or drive. But then what can he do till he is finished with a few more months of breathing treatments and chemo maintenance. It's exhausting, all of it. Thank you all once again for your kind prayers and words. We both appreciate you so much. XO
Friday, October 4, 2019
Tuesday Ted and I went to the bone marrow clinic in Indy, at the Franciscan hospital. Dr. Akard, did not say for sure what had happened to Ted to cause the fever. He did say he wanted Ted to got to the heart clinic, in the same building for a breathing test. Then he will be going back to the bone marrow clinic right afterwards. This will take place next Wednesday. They have a hold on the maintenance chemo for this month. In the mean time Dr. ordered an inhaler for Ted and a steroid med.
I do not see much energy in Ted. He seems to be tiring easier. He really isn't doing anything but a little walking. Ted also has an appointment with his heart doctor later this month. I pray that visit will help Ted. I think he needs to be back on some of his original heart meds.
Please keep praying for Ted. I am so grateful to all of you. XO
Saturday, September 28, 2019
Ted got to come home from the hospital Friday afternoon. He was tired. But this morning he is more like himself. A bit of energy and moving around better. Of course his med list is a bit different. So I will have to watch that I give him the newer meds also. I am so glad he is back home and no fevers. They pumped him full of antibiotics and had him on oxygen, while in the hospital. Thankfully all that, the nurses/doctors ,and all your prayers have worked for him. I am so very grateful. Thank you so much. XO
Monday, September 23, 2019
This is a bit of an up date about Ted. He is getting better, but still in the hospital. He is on oxygen for a few more days. He has not had fever for about three days now. Eating well and able to get up to go to the restroom. Still getting antibiotics in his IV. Thank you for all the kind prayers and well wishes. Each one has helped us so much. XO
Thursday, September 19, 2019
Ted 's golf friend takes him down to clinic in Indy...while I dip all the water out of my washing machine , which seems to have conked out. I truly am about to have myself committed. If you knew all the things that have broken and been replaced since Ted's diagnoses you would understand why.
When Ted gets to clinic he has a fever, so now they know !!! They admit him to the 4th floor bone marrow unit of the Franciscan hospital. Too doors down from the room Ted received his transplant in. Today they did a test on his bronchial tubes. The dr calls me and says they are keeping him a couple days more to see if any bacteria comes out of his lungs.
My granddaughter's job took her to Indy today and she went to see papaw Ted. He was doing well. Getting IV's. I have talked with him on the phone. Told him about the new washer I bought today. Ha.
I am asking my blog family once again for your prayers. We need them so much at this time. Please. I will forever be grateful. XO
Monday, September 16, 2019
Saturday was a baby shower for my grandson's baby. Ted's daughter came to be with him while I was gone one and a half hours. I always feel guilty if I leave him.
While all this is happening, I am trying to prep for a double scoping...yikes. I wanted to cancel for the 3rd time...but Ted said, no , he would get his brother to go with him today. So today I have to do my running around and get things ready. I start the process tomorrow....and it sounds yucky.
So asking everyone to pray for my Teddy .I am so thankful for all of your sweet words, wishes and prayers. Thanks so much. XO
Monday, September 2, 2019
Ted had a two day fishing trip with his brother and son. He enjoyed just being with them at the camp ground. He said he did catch a big fish but never got it in the boat. :) It was good for him to have that bit of time , just doing normal things. That is why I was out with my daughter looking at mums. I certainly enjoyed my time out. Went to lunch and laughed so much. We all needed that. Plus I got to sort a tote of crafting things for my sister-in -law. A bag of old clothing for Goodwill too. It's a start.
Today starts Ted's week of maintenance chemo. His brother Mic took him this morning. So that gives me time to do more sorting and laundry. Ted will get blood work and his IV drip chemo , then Tuesday , Wednesday, and Friday, it's just the IV chemo, Thursday will be the chemo and a breathing treatment. The breathing treatment is to prevent the pneumonia that bone marrow patients can get. He could have taken meds for prevention, for 6 months, but the drs. thought the treatment would work out better. .They watch all his vitals while he is taking it.
Hope all of you had a good Labor Day weekend. Praying for everyone in the hurricane's path. Please be safe.
Friday, August 23, 2019
Ted and I went to Indy for his check up. That two weeks off went way too fast. He had great vitals. Good blood work. His blood work from 3 weeks ago , that was called "Who's who" , where they see how much of Ted bone marrow is the donor's and how much is Ted's old self. In July it was 100 percent donor, today they had the results of that blood test from 3 weeks ago...it was 95 percent donor and 5 percent Ted...they want to start watching closer. So Ted gets another check up in two weeks and a maintenance chemo....oh by the way the dr. said he wants it there in Indy, not in Noblesville (which is closer to us). So another week of that crazy traffic.
Ted played a round of golf this past Tuesday. He said he did not keep score but enjoyed it so much. He was with two of his golf pals. He was a bit sore the next morning, but by the following day, he was fine. But he did say he will wait for cooler days as the heat was exhausting. He had to wear long pants, sleeves, hat and gloves....so as not to burn in the sun.
Hope all of you are doing well. Thank you for your sweet prayers and kind wishes. XO love you.
Saturday, August 10, 2019
This has been a good week and I know in my heart I have all of you to thank for it. So thank you dear friends, from the bottom of our hearts. We are so very grateful for all of you.
Friday was Ted's official 100th day. A great day in bone marrow transplants.Ted got his maintenance chemo every day this week. Granddaughter, Sierra, drove him there everyday but yesterday. Such a sweetheart to help us like she does. Ted drove himself yesterday, we went the back roads....no interstate speed drive for us. Ted received his labs, chemo I.V. , then the Hickman port was removed. Ted's counts are good. The doctor ( Dr. Luke Akard), said Ted can eat what he wants, go where he wants and do as much as he possibly can. No golfing for a week and no swimming. No mowing, or being in any place that could be dirty , like basements and attics. Not to be outdoors if there's construction, for fear of dust and dirt.....which can hold molds and harmful things. We go back in two weeks for a follow up and blood work. Ted may be able to get his next maintenance chemo in Noblesville a town that is so much closer and no interstate driving involved. That's a big plus for me, as I get to anxious in heavy traffic. :)
Bless all of you. I will always remember the prayers , well wishes, and kind words . Love you so much. XO
Monday, July 29, 2019
This morning early , Ted drove us to Indy, for his drs' appt. They did lower one med and took away another. But then made appointments for everyday next week for more maintenance chemo. Now when Ted went into the hospital for his bone marrow transplant, they gave us a book ..a book that tells you what will take place. Big chemo, then radiation, then the bone marrow transplant. The more I read the book the scarier it seemed.
Now the doctor says Ted will get a week of maintenance chemo every month for a year. I have read that book over and over and no where in it does it mention this chemo maintenance. I don't mind saying it upsets me. I just get stressed every time we go there and knowing this will happen every month really makes me sick to my tummy. Ted is okay with it, what can we do...too far into this to quit .
I thank each and everyone of you for your prayers and good wishes. They have surely helped us get this far. God hears you and we are grateful. Bless you. XO
Monday, July 22, 2019
We have had some of the hottest weather lately, it rained yesterday evening and now the humidity has dropped. It will be pleasant the next few days. Hooray.
Ted had a Dr.'s appointment today. His labs were good, but a bit lower on his platelets from the maintenance chemo he had on the 8th thru the 12th. The dr lowered some of his meds. and stopped one. Next week another med will be stopped also. Eighteen more days till that big 100 day mark. Praying Ted will not have any graft verses host disease. One of the thing that could happen from a bone marrow transplant. Please keep him in your good thoughts and prayers. Thank you and Bless you. XO
Tuesday, July 16, 2019
Hope all of you are enjoying summer. We have had the hot days, rain, sunshine.....and more rain coming our way from Barry (hurricane). Bless you. XO
Thursday, July 11, 2019
In a couple weeks,my granddaughter's husband Mark, will come help me with my computer. I know he is always busy, but he said he would make time to help. What a sweetheart . I will have him help me find my pictures or at least show me how I can load from my phone.
I hope all of you are safe and enjoying some of this summer weather. There are some really hot temps on the weather maps. Yikes, I am not good in such heat. Zaps my energy, especially if I work out in it. Like when I weed whacked this week. I got a small battery powered whacker. One I can handle, but the heat and as thick as the weeds were getting, my arms still felt wore out. LOL. I turning into a cupcake, no more grit. :(
Blessings to all of you and thank you for the good wishes and prayers. XOXO
Saturday, July 6, 2019
We had a great fourth at my daughter Angie's house. 58 people where there running in and out and playing in the yard and eating in the house and garage. The big kids played corn hole, the little ones played in the wading pool outside and lots of us right there playing with them. Then there was lego building inside, coloring books and many other toys.
My brother George and his wife Sally came all the way from Alabama to join us. We laughed, told stories on one another . The fellows told their golf and fishing stories. Recipes were exchanged among the women.
We had so much fun and good foods. But mostly we had family love to share. I am not sure if big brother will come all the way from Alabama again.
Ted did very well on the 4th and yesterday. No one was sick, so he could take his mask off. limited his hugs. Hoping the weekend will be good. Monday is the start of a week of chemo infusions. Please keep us in your prayers. I am so very grateful to all of you. XO