Tuesday, March 12, 2019

Things Change Quickly....

  I told you that Ted would be see the oncology/cardiologist today.  Yesterday morning we get a call from Ted's cancer doctor. Dr. Birhiray ask why we did not keep our appointment on the 4th.  Ted told him . One of your  nurses called and said Dr.B is all done with you... because   Ted was going to be getting a bone marrow transplant at Franciscan Hospital...once they found a match.  Now this is why I tear my hair out.  The poor communication... Dr. B. said "No I am not done with you. I want you to start a round of chemo".
 So yesterday we tore to Indy...long enough for the Dr. to shake our hands ask a few questions and hand us a paper so Ted can get 5 chemo treatments at the Riverview Hospital In Noblesville, closer to where we live. Five minutes with the Dr. Why? He could have faxed the papers to the hospital and ask the few questions over the phone.  Or his nurse could have.   We drove 50 miles for this, got lost looking for this office, as Dr. B. has many offices.  We almost get hit by an ambulance and by the time we are in the right parking lot...I just start crying.  But once we get the papers....it's back to Riverview and Ted gets an infusion. It's milder, he did well with it.
  These 5 infusions are to keep him in remission. Dr, B. does not want him to get the cancer back and be at square one again...well we sure do not want that  either.
  So we had to cancel the oncology/cardiologist appointment for now.  This is where Ted will be the rest of this week. everyday for a couple hours.
  This is the chapel, so pretty and calm. I prayed here today.
 I will be in this chapel for a while each day.
 Monday was crazy hectic. Today was much smoother. This is the sun setting into the woods down the road yesterday evening....as if nothing happened. Believe me dear friends, I need these sweet moments.
   Thank you all for your good wishes and prayers. We truly are grateful for each of you. XO

49 comments:

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    1. Thank you dear Sandi. Your prayers are so welcomed here. Blessings to you, xoxo, Susie

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    1. thank you so much Jan. I am so grateful for your prayers. Blessings to you and yours, xoxo, Susie

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  3. Oh Susie ~ how frustrating!!! I know that feeling of just falling into tears...Just remember our Heavenly Father catches evey one of them a puts them in a bottle! He understands! The chapel is lovely, and what a special place to gain back our peace. When Jill was in the hospital for 9 months after her accident...I spent a lot of time in the hospital chapel. Love, hugs and prayers, dear sister in Christ.

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    1. Wanda, I thank you for your prayers and Kind words. I know God is with me, with us. I was just wore out. We were not expecting to go to Riverview, then to the dr office 50 miles away and then back to Riverview . Barely made it back in time for the treatment. Still trying to get to all these appts. I need to call the dr. today and see if Ted can be having a tooth pulled before the bone marrow treatment. And honestly this tooth should have been pulled over a year ago...the dentist just keep it going. So much to do and wanting more time , yet scared to take too much time. You see we need God with us. Blessings to you, love, xoxo, Susie

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  4. It is maddening to be so very ill and stressed and then for the ones who should help you to give you the run-around. Hard to understand!! I am remembering you in prayer. Thankful you can go to the peaceful chapel

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    1. Thank you dear Karen. I am going into that chapel later this morning too. I need that total peaceful feeling there. Like a gentle hug. Blessings to you, xoxo, Susie

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  5. Well no wonder you were feeling frazzled. Anyone would be. Very good to know that Ted is tolerating this milder treatment well. Keeping you both in my prayers.

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    1. Vee, Thank you honey. I told Ted is getting his hair back and I am tearing mine out. :) Yesterday he and I had some laughs and we needed them. Just laughing at ourselves. Blessings, xoxo, Susie

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  6. Wow!--what a big run around they sent y'all on--so un necesary!! I would be mad. I'm glad this session of the chemo is milder and hopefully it will be easier to tolerate and maybe no, or less, side affects? Y'all are in everybody's thoughts and prayers for sure, just hang in there and take it step by step, day by day. The chapel is lovely, spend as much time as you can there if it feels peaceful to you!

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    1. HI Debbi, I have always tried to count my blessings , no matter what comes. ..some times I feel wore out and I need to cry it all out. It will be nice to be back at the chapel this morning. It's peaceful there. Blessings to you and yours, xoxo, Susie

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  7. Not sure why but This just made me cry. Its gonna be one of those days for me.
    I hate to see anyone going through these struggles but just remember God is in control.
    Hugs
    Lisa

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    1. Lisa, Don't cry honey. At times when I am blue or stressed, I just cry and get it out, pray and I am better. It finally smoothed out for a couple days now. Blessings, xoxo, Susie

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  8. I'm very glad the doctor is on top of the situation though. You wouldn't want to find out later that he should have had this treatment now. I hope this week is better. We are keeping you both in our prayers! Lots of sweet hugs, Diane and hubby

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    1. Diane, I am glad that Dr. B . is still involved with Ted's treatment. He is pushing for the bone marrow to be done sooner. So Ted's son maybe used as a donor. I will post about that when it happens. It was the fact that I was already exhausted and some times a person needs a good cry. I just keep praying and I an thanking you for your prayers too. Tell you husband thank you for us. Blessings, xoxo, Susie

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  9. Oh my mercy! Bless both of your hearts. I hate to hear such confusion going on. I know it happens but mercy. Praying for you both. The chapel looks beautiful and a time to relax and get quiet before the Lord. Oh dear lady...God has you both in the palm of His mighty hand. Hugs and blessings, Cindy

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    1. Thank you Cindy. I am so grateful for your prayers. I am going to enjoy the little chapel's quiet. Blessings to you and yours, xoxo, Susie

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  10. I am so sorry for all that unnecessary rushing and upset! I am wishing you peace, the deep peace that comes from God. I love the chapel that you showed us, made me instantly feel better to know you had that. Praying for your dear Teddy and you. xx

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    1. Kay, Thank you for the prayers. It means a lot to Ted and I. God knows prayers of gifts of love.I am going to be in the chapel in a bit here. Blessings, xoxo, Susie

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  11. Lack of good communication is everywhere these days. Another friend went through that same issue with their doctor and hospital this week. So frustrating I know. Glad to hear that Ted is doing well with the infusions. And glad there is a pretty and quiet place for you to think and pray and feel God's presence. XO

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    1. Judy, The chapel is quiet and so pretty...I would probably fall asleep if I stayed in there for a long time. I did sit in a couple different spots today and prayed. I felt better when I left. then I sat by Ted and we worked the crossword puzzle together. :):) we had a good day, for which I am thankful. Thank you for your sweet words and prayers. Blessings, xoxo, Susie

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  12. You know those doctors are just keeping a schedule and you're right, but I guess they have to see you in person for things like that to avoid a malpractice suit. I don't know. It just seems crazy. I'm glad you have a quiet and serene place like that to go pray. I'm also so thankful Ted has you to take care of him. Hang in there. xo, Connie

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    1. Thank you Connie. I did go to the chapel today, I sat in two different areas before I left it. I prayed and just enjoyed the quiet. Ted and I had a good day today ...making it a pleasant time together, even at the hospital. Blessings to you and your husband, xoxo, Susie

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  13. Oh, Susie! What a time! Please know that prayers are coming your direction from here! We hope Ted will remain in remission! Indefinitely! - xoxo Nellie

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    1. Thank you so much Nellie. Today was much more peaceful Of course today I remember to breath and pray. I sat in the little chapel and prayed. Then Ted and I sat together while he got his infusion and we did the crossword and laughed together. Blessings to you and thank for your prayers dear friend. xoxo, Susie

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  14. I hope that chemo will help. At times life brings a lot of frustration, just keep on the right track. I'm keeping my fingers crossed for both of you :)

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    1. Thank you so very much. At times it seems many things can happen at once and it can become overwhelming. I think I need a vacation. :) I did sit in the chapel and enjoyed the quiet. Blessings to you, xoxo, Susie

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  15. Dear sweet one, I will be praying for you. This kind of thing only adds to your stress. I'm so sorry. Thank God for the sunrise and the chapel.

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    1. Thank you Bonnie. Your prayers mean so much to us. We have had a better day today. I sat in the chapel and prayed, then sat with Ted while he was getting his infusion and we did the crossword puzzle and laughed at ourselves. I like those times. Blessings to you and yours, xoxo, Susie

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  16. That chapel is beautiful such a calm & peaceful place to pray. Blessings & best wishes for the treatment.

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    1. Thank you Winifred. It was a nice quiet time in the chapel today and oh I did pray. Then I did the crossword puzzle with Teddy while he got his infusion. We had some fun laughs...that helps too. Blessings to you, xoxo, Susie

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  17. Oh my how frustrating. I feel so bad for you both. That is a beautiful chapel and I wish I was there with you but know that I am in spirit. Prayers always and thanks for the update. Love you my sweet friend. xoxoxo

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    1. Thank you Susie. I am grateful for sweet friends and all your prayers which truly have helped us. Today I prayed in the chapel and once Ted was set up for his infusion, we did the puzzle together and laughed at ourselves...trying to speak some French. It was a good day. Blessings to you and yours, I think of you often and pray for you to have better days. xoxo,love you, Susie

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  18. I just wanted to cry with you! So frustrating!! I’m easily annoyed by things that seem like a waste of time, especially when much effort was put into getting it right. Love that little chapel and I will pray with you even though we are miles apart. Hang in, God Bless you both!

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    1. Thank you so much Doris. I appreciate your wonderful prayers. Today was a much better day and I did sit in the little chapel and pray. Blessings to you, xoxo, Susie

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  19. I know that all this must be frustrating for both Ted and you, but I'm praying for better days for you both. Hugs!

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    1. Pilar, Thank you honey. I am grateful for your prayers. I think I am tired and stressing easily. I know it's all up to our Lord. I think I need reminding ...lots. Blessings to you and your family, hope things are smoothing out nicely. xoxo,love,, Susie

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  20. Oh this must have been frustrating, Susie. Sending prayers for peace and remission!

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    1. Thank you so much Linda. I am truly grateful for those prayers. Lack of good communication is stressful. Blessings to you, xoxo, Susie

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  21. I am so sorry:( Sending HUGS and PRAYERS for better day today.

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    1. Thank you Theresa. After that first crazy day this week...things are getting better. Ted and I have had some laughs and pleasant moments. Trying to keep all the appointments on time is frustrating. Blessings to you and your family, xoxo, Susie

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  22. Praying with you during this time. So thankful that God provided a beautiful chapel for you to pray in, as well as the sunset to comfort you at the end of the day. That is His sign to you...God is with you...you are not alone in this battle. He will see you through. Praying here...

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    1. Thank you Pamela. I am so grateful for your prayers and kind words. I did sit in the little chapel again yesterday and will today. The infusion room was full yesterday...scary how much cancer is out there. I am thankful that God loves us and will show us mercy. Blessings to you, xoxo, Susie

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  23. Oh, I'm so sorry to hear this, Susie. Poor communication is not good, especially when dealing with serious health issues. Ted and you are already drained emotionally and physically. So sorry you had to go through all this. It sounds like you have a good doctor who knows what he's doing. The Chapel is so pretty. I would be in there all the time. Love the stained glass windows. And the beautiful sunset you saw the next day I'm sure was comforting to you. I have been thinking about my dear blog friend, and continuing with the prayers.

    love, ~Sheri

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    1. Sweet Sherry, thank you so much for your prayers. I am so thankful for blog family and friends as well as my own . Ted and are do get tired...but have to keep going, got to get that man well. We do trust this cancer dr. He very wise. Blessings to you and your family, hold them close. Love you, xoxo, Susie

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  24. I'm so sorry, sweet Susie - I bet the doctor just wanted to get the $$$ for the office visit, which he wouldn't get if he just faxed over the papers!! Keeping you both in my prayers. xoxo

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  25. Ted looks wonderful. I bet he's glad to have his mustache back. What a lovely place to sit and read. Keeping you in our prayers. Love and Hugs. Thanks for all the updates and pictures.

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  26. I'm so grateful you can get the chemo treatments closer to home. And it certainly would be nice if you hadn't had to jump through hoops but the main thing is that Ted is getting what he needs right now. It does sound so draining and exhausting, though. I'm glad you have this lovely chapel in which to decompress as he is getting his treatments. Sending love and prayers.

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