These are the reasons I needed your prayers and good thoughts. This is my granddaughter Lynzie and her sons. Max is the oldest and Luke just born , here in this photo was his day of birth.
Mark, Lynzie, Max and Luke , a young family just starting. The hospitals do more tests on newborns than I ever knew about. Some things were off in Luke's tests. The parents had to take him in for tests his first week.
Here he is at 16 days old. It breaks our hearts to learn that Luke has been diagnosed with Cystic Fibrous. He had the sweat tests yesterday. Sweat tests are for the amount of sodium and chloride produced in the sweat. It will be 2 to 5 times more than normal in a person with C.F. The doctor said he has two mutant genes, one common and one rare. He may still have another tests later.
Cystic Fibrous causes thick mucus build up in the lungs, where bacteria can grow, causing all sorts of lung issues. It also interferes with digestion . Causing the child to not gain weight as they should.There are medicines to help with all of the symptoms.
Max (big brother) will have to be tested also. I ask...beg of you all to please keep this family in your prayers and good thoughts.
One of Mark's sisters-in-law take photos...she took this sweet shot of Max kissing Luke. I am grateful for all the prayers and well wishes. Our family will all stand by this wonderful little family, and help care for them. Thank you all so much. XO
Susie, I will be praying for baby Luke and for each of you. These pictures are precious. Sending prayers and love.
ReplyDeleteThank you Mildred. I may have to accept the results of the tests...but it doesn't mean that I can't ask our Lord to heal Luke. Bless you, xoxo, Susie
DeleteI will be praying for your family and especially for precious Luke.
ReplyDeleteKaren, Thank you. I know that good people like you and Mildred are praying for us and it helps so much.Blessings, xoxo, Susie
DeleteDear Susie....heartfelt prayers are being said for these precious babies.
ReplyDeleteThank you so much Betsy. I am grateful. Blessings, xoxo, Susie
DeletePraying and believing God will perform a MIRACLE of healing. I believe Jesus is the same yesterday, today and forever. His Word states we ARE HEALED by His stripes. So hold tight to that. I am praying!!!!
ReplyDeleteThank you Robbin. I think it's okay for me to continue to asked our Lord for his healing powers. I know of people healed of cancers , when they were on the brink of death.So with God all things are possible. Bless you and your family, I know you are all going thru a tough time also. xoxo, Susie
DeleteOh, Susie.....I wish I could be right there with you this very moment and we would hug, cry and pray together. Please know I will pray for Luke, Max, Lynzie and Mark.....and you and all the family as you surround this precious child with love and prayers and support. We love you, Susie, and we're so sorry your heart is hurting......God give you strength and courage. I am praying for you this very moment.....
ReplyDeleteLinda, Bless your hearts, I know you mean this with all your heart. That is a true comfort to me. I am still asking God to heal Luke. If our faith is the size of a mustard seed , how can I not believe that God can heal Luke. He has the power. We do not know if Max is in the clear yet. The doctor will check him soon. Lynzie and Mark has cried for over a week. As a mom , grandmother and now great grandmother...that just kills me. We do not want our children to suffer. Blessings to all , xoxo,love you , Susie
DeleteI am so sorry to hear this news. I will be praying for this sweet family and ask my prayer group to pray also.
ReplyDeleteThank you so much Kathy. I do believe in the power of prayer and the more prayers the better. I do appreciate all of them. Bless all of you, xoxo, Susie
DeleteThe last photo is so precious! I will be praying for sweet baby Luke and for his family. xx Cheryl
ReplyDeleteThank you so much Cheryl. It's been a tough week for my family. We will all pull together for Luke. Bless you. xoxo, Susie
DeleteSusie, I have a close friend whose nephew has CF and I just want to encourage you that with the treatments today, these children are living longer lives. I will definitely keep your family in prayer.
ReplyDeleteHugs,Noreen
Thank you Noreen. I have read so much this past week. I know that as time goes on , better meds and treatments are and will be discovered. Blessings, xoxo
DeleteOoh Susie, I'm so sorry to learn this. What a lovely young family to have to worry about this possibility, I'm keeping them in my prayers.
ReplyDeleteHugs,
~Jo
Thank you Jo, for your prayers. I feel that the more prayers the better. I do believe that God is helping us. Blessings to you, xoxo, Susie
DeleteSusie - Keeping you all in my prayers. Sorry to hear this but medicine has come so far, we just pray for complete healing for this precious baby. Love to you all.
ReplyDeleteJudy
Judy, Thank you for the prayers. I am praying that God will show Luke mercy and heal him. Medicine has come a long way for C.F. Bless you, xoxo, Susie
DeleteSusie, I'm so sorry to hear this about your precious Luke. I'm saying a prayer for him and all of Lynzie's family, including you, Susie. This is the sweetest picture of Max kissing Luke.
ReplyDeleteSending thoughts of comfort and love,
~Sheri
Sheri, Thank you for the prayers. I truly appreciate each and every prayer or good wish. It's been a tough time. We are all learning more , to help Lynzie's family. Bless you, oxox, love, Susie
DeleteSusie, I will be praying for you and your family and pray that Luke and his big brother will receive blessings and healing from God.
ReplyDeletehugs,
Sissie
Sissie, Thank you so much. We need and are thankful for each prayer. I am going to continue to ask God to heal Luke. Bless you, xoxo, Susie
DeleteOh Susie, I'm so sorry to hear that. I don't know a lot about cystic fibrosis, but hopefully there are good medicines that can help with the symptoms. That last picture is so very sweet. Keeping everyone in my thoughts. -Jenn
ReplyDeleteJenn, The out come for C.F. used to poor..children only living to about school age...but thru the years much has improved and there are meds for the lungs and digestive system. Thank you for the good thoughts. Bless you, xoxo, Susie
DeletePraying.
ReplyDeleteRegine, I so appreciate your prayers. Blessings, xoxo, Susie
DeleteSusie, I'm so very sorry. And I will write Luke's name down and put it on my fridge to remind me everyday to pray for this dear little boy, and for his big brother Max and your granddaughter and her husband. I know that all of your family will see to it that he gets the best of care and all the love a little boy can have.
ReplyDeleteOh thank you Dewena. This means so much to me and my family members. This is a good family, both parents have good jobs and were wanting these two boys to complete their family. They will learn a different way of living their family lives...but they are tough young people. Blessings to you, xoxo, Susie
Deletesending prayers for your wonderful little family.
ReplyDeleteThank you Ann. I truly am grateful for all the prayers we get. Bless you, xoxo, Susie
DeleteOh Susie..that's sad news...There are a lot of treatments for that these days..There is a much better outlook now than there was in the 60's..Blessings to you and your family..
ReplyDeleteMissy, Since Luke's diagnoses, I have read so many things. I am thankful for better medicine and improved methods. Luke is already taking something with his meals to help him keep his weight and gain. This will be a lifetime way of living for all of us. Thank you. You know when the doctors finally let one know what is going on...it's easier to accept and deal with it. Blessings, xoxo, Susie
DeleteSusie, I'm sorry to read this about Luke. Adorable Luke and his sweet mommy and daddy and little Max are all in my prayers, as are you. God is not absent. He is right there with Luke. He has His gentle hand on him and He will help Luke all his life. Gentle hugs, Nancy
ReplyDeleteThank you so much Nancy. I truly appreciate your prayers and kind words. My granddaughter has felt better , knowing others really care. Bless you, xoxo, Susie
DeleteI am saddened to read this news. Oh course the children are in my prayers Suzie.
ReplyDeleteThank you Paul. We all appreciate your prayers . It's been tough news for all of us. But I do believe in the power of prayer and each prayer is a gift to all my family. Blessings to you, xoxo, Susie
DeleteOh Susie, I am so very sorry as I read this knowing that no words I have can convey my feelings for you all in this situation. I do know that God will be with you as you lean on Him in faith for all that you need in strength, comfort and peace. It is so good that you are such a close and loving family and your granddaughter will have so much love and support. Your family and those babies are so precious. Xoxo Connie
ReplyDeleteNonnie, I thank you for your kind words and prayers. I have been so grateful for my blog family. I believe in the power of prayer, so I needed each prayer and good thought for my granddaughter's family. They have had praying over Luke and many crying times also. It's been tough. You know as a mother and grandmother, when our children suffer, so do we. I know in my heart that God will always be there beside Luke. That is a comfort. Bless you and yours, xoxo, Susie
DeleteI will be praying for your family for God's healing of Luke. He's so precious ... both boys are!
ReplyDeleteThank you so much Carol. I truly appreciate your kind prayers. Bless you, xoxo, Susie
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