Wednesday we went to the Franciscan hospital in Indianapolis . Ted had a battery of tests, lots of questions and answers too. This is a huge complex on the southside of Indy. You know all the way around the bypass 465....which people drive like it means 46"500".
This is the room of the nurse navigator. Her name is Tammy. She will be with Ted throughout his whole time and procedures here. Tammy did tell us of the 12 point matching system, Ted and his donor matched eleven points, with the twelfth point being a minor one.
Dr. Anand Tandra will be his number one doctor. He did a bone biopsy on Ted Wednesday. Told us all the scary parts of the transplant. Plus the good .
This is the waiting room , where granddaughter Sierra and I waited for Ted to have a pulmonary test and an EKG.
He had x-rays also. Then we went over his case with a social worker. No offence, but what are their jobs really? All I have talked with are confusing. She was telling us we need to find rooms to be near the hospital....in Indianapolis during May...are you kidding me. With the Indianapolis 500 Race events. Pray for us.
I have a few numbers to call and try to find some answers. Ted will be going into the hospital the last week of this month and go thru chemo to get his resistance to zero, to prepare for the transplant. I am terrified myself. But I pray. I try to relax...I am not sure I even know what that means anymore.
Prayers for all of you. XO
Oh Susie, I keep you in my prayers, it’s been such a journey, you both must be exhausted. Sometimes just all the thinking and planning involved are exhausting, keep strong, sending my love.
ReplyDeleteThank you so much Laurie. It is exactly as you said ...all of it is exhausting. The not knowing where to turn. I pray for strength everyday. I just want to get thru each day as best as I can. Blessings to you sweet friend, xoxo,love, Susie
DeleteIt is amazing what medical science can do-- but God can do even more amazing things.
ReplyDeletePraying for you all!
This verse came to me this morning for something that is on my mind. But I think it is for you too... :) (maybe the "them" for you is unknowns or worries or the sickness itself)...
DeleteDeuteronomy 31:6 New International Version (NIV)
Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you.
Oh thank you Sandi, I absolutely needed this today. It helps my heart to know others care and share prayers with us. I can not let my mind go to dark places. Blessings to you, xoxo, Susie
DeleteThat would be so overwhelming to me. I pray for every need to be met and for the Peace that passes understanding. It is truly amazing all that has happened this far to help Ted regain his health. Trusting Jesus!!
ReplyDeleteThank you my dear Karen. I always feel so good after I visit your blog. :) God has seen us thru so much so far. I try not to think to far ahead. Some times I think the drs. and hospitals think we live in the parking lot in a camper , or travel by helicopter. Their wishes and desires are demanding. That's half my stress. LOL. Blessings to you and thank you for your kind words of hope. xoxo, Susie
DeleteI understand how terrifying this is.
ReplyDeleteOkay....regarding the social worker.....please tell her about needing a hotel room and ask if she can help with that. Maybe there’s something she can do. I’m so sorry that is just one more thing you have to deal with on top of a jillion others. I’ve been praying every time I think of y’all...which is often! You can do this, Susie! It’s not going to last forever. Just keep taking the next step. One foot in front of the other.
When this is all over and life resumes it’s normal behavior......you will look back and marvel at all you did and how well you handled everything. But for now, you just have to get through it. Love you and Ted so much! Much love and many prayers surround y’all.....
Thank you Linda. I am going to call that social worker again. I found some new numbers to check into. I bought lots of paper products to help when I have to have Ted at home...easy clean up, don't have to worry about the germs so much either. I have bottles of hand sanitizers all over the house. I am trying to stay ahead of that game. I think this cold has drained much of my energy too. I appreciate all your prayers and thank you for them. Blessings to all, love you guys, xoxo, Susie
DeleteI am glad things are looking good! I know it must be all so overwhelming. It would sure be nice to have something like dedicated hotel room for patients families...but I am sure
ReplyDeletethose would be filled quickly, too. The social worker should be helping you find that hotel room. xoxo
Linda, That is exactly what I thought...do you job. LOL. I can afford a high dollar hotel , but would get help form family too. You know when cities has special events the price of rooms goes way up. I may have to pitch a tent in the hospital parking lot. LOL Thank you for understanding. Blessings, xoxo, Susie
DeleteLinda, I mean I can not afford a luxury suite. LOL
DeleteYou both are still in our prayers. God bless you both!
ReplyDeleteThank you Carol. The prayers are such a wonderful gift. Blessings, xoxo, Susie
DeleteIt's a scary time for you all. My niece had her transplant 9 years ago, it was a long road to good health but thankfully she is very well now. God bless.
ReplyDeleteThank you Winifred. I love hearing about others becoming well from transplants..it gives me such high hopes. Blessings to you, xoxo, Susie
DeleteI continue to keep both Ted and you in my thoughts and prayers Susie. Modern medicine offers so much, and we are going through our own struggles right now, but can only trust that the doctors have the knowledge and strength to guide us through.
ReplyDeleteBlessings to you dear, sweet friend.
Hugs,
~Jo
Thank you so much Jo. I appreciate and welcome your prayers. It's a gift we can all give one another. There are wonders happening everyday in medicine. The drs. make us feel that they are confident in their abilities. Blessings, xoxo, Susie
DeleteOh you just wouldn’t be human if you didn’t have some anxiety, but it sure looks to me as if The Lord has been walking this road right with you and taking care of you each step of the way. Praying for all to go just as it has been planned. Praying for comforts and peace along the way for Ted and you and all the family. Keep looking up! And for accommodations, too!
ReplyDeleteThank you so much Vee. I know the Lord is with us. All the prayers everyone is sending to heaven for us are working. I do let my mind run ahead at times. I know it's one day at a time...I need to remind myself daily I guess. LOL. Blessings to you, xoxo, Susie
DeleteOh sweet Susie, I can't even imagine what you are both going through. Sending you so many hugs and prayers xoxox
ReplyDeleteThank you Debbie. Your prayers and hugs are just what we need. I am ever so grateful for everyone's kindness. God is with us , because he hears the prayers. Blessings, xoxo, Susie
DeleteMy thoughts are with you daily, Susie! Sending you love and hugs! xo Nellie
ReplyDeleteThank you Nellie. I am so grateful for your prayers and hugs. We are thankful for everyone's sweet prayers. Blessings, xoxo, Susie
DeleteI'm praying so hard for you both and you hang in there. God has brought you this far and he will not forsake you. I'd be just like you, scared as well with good reason but I've got a good feeling about it. Sending lots of love and hugs sweet friend. xoxox
ReplyDeleteThank you my friend. Susie all your prayers and good wishes have helped us . God is with and has been this whole time. I need reminding I guess. I just get that big scared feeling once in awhile. Some times it's not knowing where to turn , where to look. Blessings to you dear friend, xoxo,love you, Susie
DeleteI know all this must be exhausting for both you and Ted, but as this journey continues I pray for you both. Sending prayers, hugs, positivity your way!
ReplyDeleteThank you my sweet Pilar. I appreciate your wonderful prayers and good wishes so much. All of you praying for us , it's really helping. Blessings to you, xoxo, Susie
DeletePrayers for all of you. I am a cancer survivor, so I know all things are possible.
ReplyDeletenonie
Thank you Nonnie. I am encouraged by everyone who has been thru this or have helped others. All the beautiful prayers from everyone has helped us enormously. I am grateful . Blessings to you and yours, xoxo, Susie
DeleteMy thoughts are with both of you. I really hope you find a place to stay that is reasonably priced. Strength and hugs to you! -Jenn
ReplyDeleteThank you Jenn. I am hoping my daughters can help . They are more computer savvy than I am. Blessings to you, hope all is well there. xoxo, Susie
DeleteI am praying for a completely successful transplant for Ted and for strength and calm for you. Please take good care of yourself when you are a care giver. Scripture tells us that God has plans for us, for good and not for evil.
ReplyDeleteThank you Terra. I so appreciate your kind words and prayers. At times it all is overwhelming. I am trusting our Lord. I cry, then I pray. Blessings, xoxo, Susie
DeletePraying for complete healing for Ted and for peace and strength for you both.
ReplyDeleteThank you Jan. I do pray for strength everyday. I am praying for Ted to get past all this hospital stuff and be on the road to recovery. Blessings, xoxo, Susie
DeletePrayers
ReplyDeleteYou are four miles from me at that hospital
I moved to Indy Dec 2017 near daughter
Hi Brenda. Then you must see the hospital. It's a big complex. It right off 65 which comes off 465. Crazy traffic...which I can even handle. Hope you are nearer your child. Blessings, xoxo, Susie
Delete3 miles from daughter-was 350 miles
DeleteSon in Florida but go often
There is a Holliday inn express on 65 off county line road
Have stayed there when visiting here with ex
Nice
Prayers
Prayers
Keeping my prayers going for all of you. Have you looked into maybe a Ronald McDonald house to stay in while Ted undergoes this procedure. Most hospitals have a connection with these places for families from out of town to stay while their loved one undergoes treatment. Maybe there is one associated with this hospital. Have a good weekend. Keeping my prayers going that everything will go as planned and with a very good outcome.
ReplyDeleteHugs,
Kris
Kris, I think they have places, that are full right now...or they have regulations about how many miles you have to live from there. We are 64 from the hospital. I will be calling that social worker on Monday. Thank you always for your prayers. Blessings, xoxo, Susie
DeleteSusie, I am putting Ted and you on our prayer list at church. God will work it all out for you. I think it's a good idea to make that Social Worker work for you and help you to find a place to stay in Indianapolis. They have resources that you don't. Stay as strong as you can (being sick doesn't help) and believe that all will work out. It will. And you will be amazed at what you were able to do when you look back on this time.
ReplyDeleteThank you Kathy. I am happy to be on your church prayer list. Ted and I appreciate that so much . I have had others do that too. The more prayers the better. Blessings to you and Joe, xoxo, Susie
DeleteI will continue to pray along the way to get Ted ALL BETTER! Enjoy your day dear friend, HUGS!
ReplyDeleteThank you so much Theresa. All your prayers certainly are helping us. I am so grateful everyone's kindness. Blessings to you, xoxo, Susie
DeleteHi Susie, It all does sound overwhelming but deep breaths, one step at a time and God will make a way for everything to fall into place even if it feels like everything is scattered all over the place. I can only imagine how frightened you must be . I haven't commented much but I do read the blogs still. Know we are with you in spirit..
ReplyDeleteThank you so much Robyn. I am thankful for your prayers and wise words. Ted is eager to get the transplant, so I am raying it works quickly, so he is not so ill for long. Blessings to you and yours, xoxo, Susie
DeleteDear Susie,
ReplyDeleteI am praying and I have my family praying too.
Goodness, what a comment for the S.W to make. I agree with you.
Doing Meals on Wheels I have met some S.W and I have often said the same thing as you shared.
I know that may not be nice, but I do wonder.. what do they do?
Take Care .. I am praying .. Happy Easter too.
Carla
Thank you Carla, Your prayers are a precious gift to us. I am so grateful for my blog family too. Blessings to you, xoxo, Susie
DeleteDearest Susie, I can feel your fear thru your post...but I can also feel your faith that things will be ok. Bill went so fast, we hardly had time to get real upset...he had beat so many cancers before, I was in denial and felt he could win this one, too. God took him in less than 5 months and I am thankful that he is where he worked all his life to get to.
ReplyDeleteI pray things will go better than you think and that you stay strong and faithful. love to you, ox
Thank you so much BJ. I want to be strong on my shaky legs. :) I know God is good and has been by my side thru this all so far. He won't desert us. Ted is so hopeful of this procedure that's going to be happening, that I think he doesn't hear the scary parts...I wish I had not. Yes, I am so scared. I just have to pray harder. LOL. Blessings to you , love, xoxo, Susie
DeleteDear Susie, I do hope that you and your sweetie are feeling the prayers of others. God's Got This....Hugs and blessings, Cindy
ReplyDeleteThank you Cindy. I know in my heart all the prayers of everyone praying for us has helped us so much and I am grateful. What a blessing it is to have caring people in the world praying. Bless you, xoxo, Susie
DeleteAll good thoughts and prayers are with you. With all systems go so far, I think you are well on your way. Sending love.
ReplyDeleteThank you Jeanie. I am so thankful for prayers and well wishes. I just have to stay strong. Ted is eager to be there and getting it all done. Blessings, xoxo, Susie
DeleteGreat post. Keep sharing your creative insights and keep inspiring us! Happy Easter to you ! Lots of luv n regards, Sonia
ReplyDeleteThank you Sonia, I am ever so thankful for my loved ones and friends and my blog family...who pray for us with caring hearts. Blessings, xoxo, Susie
DeleteSusie, all of this sounds so positive and glorious. I am so happy for you both and praying that each single aspect of Ted's care will be covered to perfection. It's so hard, but there is hope and God is good.
ReplyDeleteHappy Easter and God bless you both.
Connie
Thank you Connie. I am grateful for your prayers and I keep you and Steve in ours. We must all pray for one another. Trying my best to stay strong. Blessings to you sweet friend, xoxo, Susie
DeleteThis is an awful awful hard thing that y'all are having to go through. Just take it one step at a time, one day at a time. Y'all are going to get through this and come out even better and stronger for it. Sounds like his match is almost 100% a perfect one, that is great news!--keep that in mind and that so many people are keeping both of you lifted up in prayer. Stay strong as you CAN...and remember that sometimes, it's ok to also be "weak" and let others help and/or take over some tasks or whatever...and to offer you comfort and their strength. Hugs!
ReplyDeleteThank you Debbi...at times I get scared and forget to take one step at a time. LOL. it's as if I want to leap into the future of Ted being on the road to recovery. I am just so thankful for my wonderful blog family and their loving prayers. Blessings to you, xoxo, Susie
Deleteoh susie, as difficult and overwhelming as all of this sounds...looks for the positives (easy for me, right?). as we age, new changes evolve in the medical field that help us in our time of need. medically, we could not be in a better place. it sounds like you have wonderful doctors and nurses taking care of ted, that he will be in good hands...that every aspect of his care is being tented too...i hope you can find comfort in that!!
ReplyDeleteyou may find you need the social worker when it is time to go home. i felt the same way you do now BUT she was very helpful when i went home from the hospital after an MS exacerbation.
hopefully writing about it all helps and at the end, you will have a journal of it all!!
Thank you Debbie. I bought a notebook at the time Ted was diagnosed and kept close track of some things. I wanted it for him to read after he was all well and wondered about what happened. I am so happy you are doing better. I did talk with the S.W. again today and she was more helpful. I think at times we get info overload and it makes me kind of nuts. LOL. Blessings to you and yours, xoxo, Susie
DeleteOh Susie, this has been such a difficult time for you trying to find answers to all the questions you have. I think you're doing a great job though, and hang in there, dear friend. And all the tests that Ted has had to go through. He has been through some awful times with pain and discomfort. I know what you mean about the social workers. Sometimes they tell us common sense things that we already know. But then, sometimes they can be helpful. I'm so sorry you are frightened and have to go through all of this, Susie, and am saying prayers for you both daily.
ReplyDeletelove you, ~Sheri
Sheri, Thank you for the prayers. I am doing better today and Ted and I had some laughs...it's been awhile..He's is almost over his cold and I am getting there. The time for his treatments is getting closer and closer. I am praying to stay strong. I am blessed with loving family , friends, and even a caring blog family....all the wonderful prayers are helping us. Blessings to you, xoxo,love you sweet girl, Susie
DeleteDear Susie, I am praying for you and Ted, also. May the Lord place the right people in your path as you go thru this. xoMildred
ReplyDeleteHi Mildred, I have missed you. Thank you so much for the prayers. We are grateful. Bless you, xoxo, Susie
DeleteOh, Susie. I don't even know how you are staying so strong through all of this. My prayers and thoughts are with you and your family. Take care my sweet friend..xxoJudy
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