Sunday, March 28, 2021
Tuesday, March 2, 2021
Thursday, February 25, 2021
The latest on my Ted...he is in a holding pattern at the very room where he received his bone marrow transplant, at the Franciscan hospital., on May 2019, He went to see the IBMT drs yesterday. He was to see them on the 5th, but was in IU Heath at that time. Then on the 16th , the big snow storm came and so yesterday was the new appointment . Once they took his blood labs and saw how low his counts were they kept him. He had a plasma transfusion . This morning they did the bone biopsy on him. Praying for some kind of answers . Spoke with him this afternoon and he seemed stronger than he has in 2 months. Faith is keeping me hoping for help in getting Ted back on his feet. I am asking for your prayers dear friends. Thank you for wishes of good health and prayers. XO
Wednesday, February 10, 2021
This is just one of the snows . It has snowed more and more coming. That arctic cold is coming our way also. Kind of hard to stay warm at times.
I will give you an up date on Ted. He is still at his son's house. Going to doctors and having Physical Therapy. He saw the eye specialist on Monday and was taken off some of the meds and the eye drops were lowered. The shingles in his eye make him have really bad pain at times. He has found that ice packs help with that somewhat . A couple of Tylenols also.
He has been getting some PT and says it wears him out but makes him feel he is doing something to get better. We get to talk and text all we want, or as much as he can do . Today Ted goes to the pulmonologist. This will be an important appointment. We need to know more. Ted is still on the nebulizer and the oxygen. His oxygen level is lower, which is promising.
My children and grands have been helping me . I am so grateful for my family and friends. I want to ask you, my blog family , to keep Ted in your prayers. We are so very thankful for the good wishes and prayers. You are in ours. Be safe. XO
Thursday, January 28, 2021
Last week the lung dr at the hospital did a bronchoscopy on Ted. They did not find anything. Started saying he may have some fibrosis...yet they want him to see another lung specialist, when he is ever released from the hospital. ??? In the mean time his cancer dr wanted a bone biopsy...but his counts were so low he could not have one, for fear of bleeding. Since that happened, he was barely able to talk long on the phone.
Thank you to all who send well wishes and prayers, kind thoughts. You are all so wonderful. I am sorry I have not responded to comments at times....it's just been a depressing time for me without Ted here at home. I want to think that things are starting to look up. I thank God for giving us these good days. Take care, wear your masks, get those shots. XO
Tuesday, January 12, 2021
We call and they make a virtual appt for this morning. But yesterday I saw some rash on Ted's forehead and some blisters, so I tell him I think he has shingles. I look some things up on line and then I know he has shingles. I tell him we need to call the bone marrow clinic. They returned our call and told Ted to get to ER.
I called my daughter Angie and she comes to take Ted to ER. Tells me to stay home I can't go as they will not let me in the hospital . I tell her, I have to put my coat on to help you get Ted in the car, he is a weak person right now. Sure enough, his legs about folded when he was getting in her car.
Later, I call the hospital, they say Ted may go to Indianapolis , so an eye specialist can check his left eye as they think the shingles are in his eye. I wait for calls. I call the hospital. They say Ted has been taken to Indy. I get no calls from either hospital. So this morning I call Ted. He is going thru tests and would call me back. No calls. You can't go to the hospital , you will not get any calls from the hospital staff, I am angry. Why? Just one staffer could give a short call. So when they ask for a review, I plan on giving them one. I try to be kind and nice and understanding....but I am ready to snap.
All I know is Ted has shingles, I diagnosed that myself. One dr said he was low on sodium and was drinking too much water, after Ted told him he drank 3 -16 ounce bottles of water a day and a coffee. Now I say pneumonia needs lots of liquids, plus the steroids, he had for helping take care of pneumonia, helped bring on the shingles. What do we do?
Please send up some prayers for Ted. Thank you so much. XO