We see the doctor again in two weeks about more maintenance chemo. Dr. B. said he would lower the amount of days to 3. Ted has been saying he feels much better. The dosage of chemo was lower the last time.
Ted is 54 days away from his year marker of the bone marrow transplant. The doctor told Ted he could not go on the fishing trip he had planned for the second week of May. Ted and his family go fishing in May to Reelfoot Lake in Tenn.
I could see the disappointment on Ted's face. I actually cried later. But doctor Birhiray said , "Better to cancel this year and be able to go the next twenty years." Told Ted his counts were too low and he would be getting those lower chemo treatments. Which does make Ted weak.
I don't mind saying, I am tired. I had planned to have my cataracts taken care of soon. Not sure they will do it as I have a retina detaching. My family eye doctor wants me to go to the eye specialist In Indianapolis (of course). He says they will have better ways to check my eyes and they will say if I am ready for surgery.
Well that's what we have been doing , going to doctor office visits. I have learned the decor is a snooze and the chairs are so awful. LOL. Oh I can't help it.
Praying for all of you in need. Praying for our country and our world. XO
Praying for you and Ted. I know you are tired and rightfully so. We are having lots of family sickness too. Together we will keep the faith and we will keep prayers flowing that better days are ahead. HUGS!
ReplyDeleteThank you Theresa. I am grateful. I am not down all the time...but oh there's days where I cry , to let it all out, then I pray on it. That helps. I pray for your family, your brother and sister. Blessings to you and your family, xoxo, Susie
DeleteGo right ahead and tell it like it is. Awful chairs! And that’s the least of it. How exciting to think about fishing for twenty years. 🎣 Hope that you are able to get the care you need for your eyes. Caregivers have needs, too!
ReplyDeleteOh thank you Vee for understanding. I am flat wore out. LOL. Yes, those blasted ugly uncomfortable chairs. LOL Gotta some to keep from crying. Ted has accepted what the dr said. He had to inform all the brothers , their families and his son. I am truly hoping I can have the cataract surgery. Blessings to you dear friend, praying for your recovery too. xoxo, Susie
DeleteVisiting doctor offices all the time would definitely tire one out. Will be praying those counts come up. With Spring coming I think we all tend to feel better. Nothing like fresh air and sunshine to make one feel better. Sorry about the fishing trip, but I'd agree with the doctor, in the long run it's better to stay home right now so it can be enjoyed later on. Maybe there is someplace closer home that a day of fishing could be enjoyed without expending too much energy. Praying here too !
ReplyDeleteThank you for the prayers. Sending some for you too. I will be happy to sit outside and listen to birds and maybe put my feet in the sun...lol, I don't stay in the sun long. Blessings to yoy , xoxo, Susie
DeleteTake care and try to take in the energy of Springing ahead. Nothing like fresh air and sunshine, to perk you up. Praying always that things will get better. Hang in there!
ReplyDeleteThank you. I do have to pray for God to send me strength to get thru most days. Hope he never tires of me being on that prayer line. Bless you, xoxo, Susie
DeleteBless your sweet heart Laurie. I am thankful for the prayers...they truly help us. It is something we all can do for one another. Ted's trip with the men was to be a week of rest for me. LOL. that might actually be why I cried. LOL. Blessings to you and yours, love you, xoxo, Susie
ReplyDeleteTHIS IS SAD FOR TED AND YOU. I UNDERSTAND ABOUT THE RISK FOR YOUR EYE SURGERY. I PRAY THAT YOU DON'T GET THE VIRUS. I KNOW YOU WANT TO VISIT YOUR RELATIVES. HOPE THE SPRING WEATHER WILL MAKE US ALL FEEL BETTER.
ReplyDeleteKAREN, MY SON IN LAW WAS IN THE HOSPITAL AND MY DAUGHTER DIDN'T TELL ME, FOR FEAR I WOULD WORRY...WELL YES, I WOULD ..YOU KNOW I INHERITED MY MOTHER'S BIG OLD WORRY GENE. LOL.. I THINK TED HAS RESOLVED TO THE FACT THAT HIS COUNTS ARE TOO LOW TO FISH RIGHT NOW. BUT WHEN THE DR SAYS OK...HE WILL BE OUT THAT DOOR. BLESSINGS TO YOU KAREN, LOVE, XOXO, SUSIE
DeleteI'm so sorry, Susie. Praying for you and Ted for strength and peace, and for healing.
ReplyDeleteThank you Jan. I truly am grateful for your prayers. Ted was in better spirits today. I think once he thought of what the dr. said , he was resigned to it. Bless you, xoxo, Susie
DeleteOh Susie, my heart breaks for you and Ted and the disappointment of the trip. We also have had to cancel any trips. Don wanted so bad to go to Boise ID to see cousins, but that's out for now. You are my hero...I know what endless doctors visit are. Ours have slowed down some...but that dang water keeps creeping up and my dearest had to take the power pill again..such a rollercoaster. But God is good, and gives us strength for each day. Love and hugs to you and Ted.
ReplyDeleteWanda, There's just so much that can cause set backs in a person's recovery. It's sad and upsetting at times. I trust our Lord with this journey. I just get exhausted at times. Some times I feel like a hamster running on one of those darn wheels. LOL. I am praying for you and Don too. It is one way we can all help each other , with prayers. Blessings to you and your family, love you, xoxo, Susie
DeleteSusie, I haven't visited for a while, but I have been praying for you. I can relate to how you are feeling with being a caregiver for so many years myself. The hospital, doctor visits seem to take up all of our lives. Do you have a hobby that you do to have some time for yourself? I had and have my embroidering that I do to relax. I pray for your cataract surgery and for it to be a success. It makes so much difference. I couldn't believe what I could do after I had mine done several years ago. Sending you lots of hugs and prayers. Take care of yourself.
ReplyDeleteShirley, You are so right, running to appointments is our lives now. We have seen so many drs, I could not begin to say how many. The IBMT drs and the oncologist are the main ones. Then the heart doctor is involved at times. I really want my cataracts taken care of, so I can see. I can not drive at night, too much glare from headlights. I know you cared for your hubby a long time. Then had many things for your own health. Hope you are doing better. Stay strong. Blessings to you and your family, xoxo, Susie
DeletePraying too.
ReplyDeleteThank you Sandi. We are truly grateful. Blessings, xoxo, Susie
DeleteI'm so sorry for all that you and Ted are going through. I hope things will improve soon and you will be able to get your eyes checked and taken care of. Keeping you both in my prayers.
ReplyDeleteThanks for you prayers. They mean so much to both of us. This journey is longer than I ever dreamed. But Ted is feeling good today and I am grateful. Blessings, xoxo, Susie
DeleteHello. Sounds like you and your husband are going through trying times. That is so hard. Prayers that Ted can improve as he follows the doctor's instructions and that you can get your eyes taken care of. Hugs from UT.
ReplyDeleteDeb, We are thakful for the prayers. I know they help us. I just start to lose energy at times. You know sitting around in waiting room, examining room and such is tiring in itself. Ted says he feel good today, so that is a good day. He will reach his year mark in 54 days. That's a big plus. Blessings to you and yours, xoxo, Susie
DeleteIt's hard to want to go out anywhere right now. We had to go yesterday into the city for my husband's appt at the hospital...you don't even want to be there. As much as I want to be out and about, we're not doing it much anymore.
ReplyDeleteLinda, The places we get to go to are the ones with the most germs, don't you think? I don't even like going top the grocery. Might have to shop like my neighbor lady...she has her stuff delivered. Stay healthy . Blessings to all, xoxo, Susie
DeleteWe are having almost everything delivered right now.
DeleteThoughts and prayers going your way, dear Lady!
ReplyDeleteSue
Thank you Sue. Your good thoughts and prayers are so appreciated. One day soon, hoping the chemo treatments will get to stop.His year mark for the transplant is nearing. Blessings, xoxo, Susie
DeleteOh, Susie! I know how disappointing that diagnosis was for Ted AND for you. It would have been good for BOTH of you if he could have gone on that fishing trip. However,with his immune system being what it is, he is better not being out and about anyway. That makes life harder for you, I know.
ReplyDeleteMuch love to you- wish I lived closer. I would come for coffee and bring goodies. xo xo xo Diana
Thank you my friend. Diana, I was thinking of Ted's trip as a mini vacation from nursing. LOL I need it. Dr. B said with Ted's counts so low he could die from something that would not be dangerous to others. So it's better to just cancel his fishing trip and sit at home. He missed the one last year also. It's been a long tough journey, but I know the good will come from following orders. Ha, if you lived closer we would wear that road out. LOL. Girls gotta talk and shop and drink coffee right? You and your family are in my prayers too. Things will be fine . Blessings to you, xoxo,love you, Susie
DeleteSo sorry to hear about these hard times you are going through. Prayers that all be be well and back to normal.
ReplyDeleteThank you Happy. I am grateful for the prayers. Ted is also. I always tell him what everyone says on my blog . People have been so kind and caring. God is good. Blessings to you, xoxo, Susie
DeleteAh, heck! I'm so very sorry and will keep you both in my prayers. I like what your doctor said about skipping this fishing trip to go on the next 20. Now that is something to celebrate!
ReplyDeleteTerri, That is exactly what we thought once the shock of his counts soaked in. We have come too far to slip up now. Than you for your prayers they mean so much. Blessings to you, xoxo, Susie
DeletePrayers Susie. This has been a tough journey. Big hugs and love sent your way.
ReplyDeleteThank you so much Kris. Every prayer has been a big help for us. Ted has been feeling good, but his labs show the red and white cells are low as are the platelets. But the hemaglobin is 11.4 which is pretty good. With the white cells so low, it would not be safe for him a round so many others spending a week together fishing. So he is ok now, knowing this is the last trip he could miss. Kris, I have thought about all of you since Terry's father passed. Life can be so hard and even seem cruel at times. I still miss my parents and they have been gone a long time. Be strong for each other. Blessings to all, xoxo,love, Susie
DeleteGlad to see pictures with No Snow !!!, Don't put off your Eye Surgery !!!! Keeping you and Ted in my Prayers, God's Blessings !
ReplyDeleteThank you so much for your prayers, they are a powerful help in our journey. I have put off my surgery way too long. I absolutely have to go thru with it soon. Blessings to you and yours, xoxo, Susie
DeleteOh Susie, I pray those Dr visits are soon history for you! I'll add another item to your list...the magazines are old =) Please take care, my friend!
ReplyDeleteHi Doris, Thank you for the prayers. Less trips and needs to visits drs. is one I pray for also. :) Oh I never touch those magazines...I bring my own things. My girls call me a germaphobe. I am a bit. Blessings to you and your family, xoxo, Susie
DeleteKeeping you both in my thoughts and prayers dear ones, let's hope this is the last year for constant doctor's visits, and Ted's health will be fully recovered. Those Dr visits drive me crazy, it's always something, and return visits. Warmer weather has appeared today, it feels so encouraging.
ReplyDeleteHugs,
Jo
Jo, Thank you so much for the prayers, we appreciate them.I often wonder about some of the follow up visits. I was amazed the lung dr didn't make a list of them...but she was very good and said come back after his chemo treatments cease. Oh I am ready for temps to hang around 50 -60 for a few months. :) Blessings, xoxo, Susie
DeleteHi Susie! I hope you are doing well. I'm sorry to hear that Ted can't go on his trip. Keeping you both in my prayers. Have a wonderful week! Spring is almost here!
ReplyDeleteThank you Pilar. I have missed visiting you. Ted is ok now about the trip, knowing it would be too risky. He will get to go next year and truly relax...that is our prayer. Meaning he would be recovered. Hope you and your mother get to relax and enjoy the spring. It is to be over 50 here today. Blessings,xoxo, Susie
DeleteOh Susie, I wish your news was better. I switched to a retina specialist when I was diagnosed with retina issues and they have ways of measuring and scanning years ahead of my regular eye doctor. I'm fortunate that it's not much farther from home and easy to get to. Continuing prayers for you and Ted.
ReplyDeleteThank you Carol. I will hopefully get good treatment at the eye surgeon's clinic. I feel I will not get the cataract surgery but get sent to the retina specialist...which will make this one of those run around kind of procedures.I really like my honetown eye dr...so I feel I should trust his judgement. Thanks for the prayers. I need them for Ted and I. Blessings, xoxo, Susie
DeleteAlmost a year since the transplant. Wow -- that's big. I'm glad you are laying low with this virus about you don't need one more thing to put on the plate. You take care, too. You need rest as well. Sending hugs, j
ReplyDeleteThank you Jeanie. Honey, there are days where I feel so stressed. Dr told Ted yesterday he may get 6 more chemo maintenance treatments. No expecting that many more. Take of yourself too. Blessings, xoxo, Susie
DeleteSusie, it must be so hard. Just try to keep your spirits up as there will be a better time. How disappointing that Ted can't go on his family outing, but things are not looking good in this world right now and they say it will get worse before it gets better. Sometimes it is hard to think what will happen, as we aren't always kept up on the truth. I'm sorry to say it but it is getting to be the way of our lives now and the best thing for all of us is just to take care of ourselves the best way we can. It won't be easy but as they say, this too will pass..Im sorry to unload on you. You have enough going on, but I get very upset when I think of humans in the situations as your dear husband is and it all is seeming to be taken so lightly..Take care..xxoJudy
ReplyDeleteSusie, I'm so sorry Ted's tests were off, and that he can't go on this yearly fishing trip. I know he must be so disappointed. And I know how tired you must be right now, Susie, taking care of Ted and having issues with your eyes. I hope you are able to have the surgery soon.
ReplyDeleteI was supposed to see all the family this weekend for a fundraiser, but it was canceled due to the virus going on right now. I sure do miss those grandchildren, Susie.
Well, take care, and I'm sending you a big hug and lots of love. I hope Spring comes to your house soon. : )
~Sheri
It's a long journey but God willing he'll get there. Yes these cancellations are disappointing but the doctor is right not worth the risk.
ReplyDeleteRemebering you both in my prayers. God bless. x
Susie- praying for you, too.
ReplyDeleteOh sweet girl, I'm so sorry. I can feel your pain. I know you are tired. My heart is with you.
ReplyDeleteJust checking in to see how you're doing, Susie. We are all Ok here in California, and Nel's college students are doing their school work on-line right now, while Jess's elementary school is closed. Just taking it one day at a time and saying a lot of prayers.
ReplyDeleteStay well, my dear friend.
~Sheri
((((HUGS)))) Just wanted to see whats up and give you a proper distance Hug and still keeping you and Ted in my Prayers !
ReplyDeleteHi Susie, just checking in to see how you're both doing, hope all is well. Sending lots of hugs!! xx
ReplyDeleteJust checking to see how you are both doing and hoping that all is going well and you are both doing OK. (((HUGS)))
ReplyDeleteHello there, Susie! First time visiting your blog and, I really like it. Spring is finally here, btw and, I'm so happy because... It's my favorite season. Hope to see you around girl, and, stay safe! :)
ReplyDeleteJust stopped to see if y'all are doing ok?------sure thinking of you! Hope all is well. Hugs!
ReplyDeleteJust stopping by to check on you and Ted, I had you both on my mind this morning, and hoping all is well. A difficult and surreal time for us all, but by the grace of God we will get through this.
ReplyDeleteSending love and beautiful sunshine to your little part of the world.
Hugs,
~Jo
So sorry for the counts, and all that must be complicating his condition with regard to the virus. These are troubling times. Stay home as much as you can, take care as best you can. That seems to be all any of us can do. Like you, I think this is the new norm...for the foreseeable future.
ReplyDeleteSandy's Space
I THINK OF YOU OFTEN AND KEEP YOU AND TED AND YOUR FAMILY IN MY PRAYERS. MY SON HAS COME TO STAY WITH ME AND HELP ME OUT DURING THE CORONA CRISIS. I AM SO THANKFUL.
ReplyDeletePopping in to say hi, hoping all is well with you as I make my blog rounds.
ReplyDeleteSandy's Space
I've been thinking of you, Susie...hoping you and Ted are doing okay in these uncertain times. Sending prayers...xoxo
ReplyDeletejust stopping by to say hello and Make sure y'all are doing ok! Hope all is well and Ted is staying healthy. Is spring there yet? Is everything closed down there?
ReplyDeleteI'm thinking about you and Ted this morning and want you to know you are in our prayers. Take care and I hope you can let us know how you are soon. You know how I am....I worry! Love to you both, Diane
ReplyDeleteI just wanted to wish you a Happy Easter, Susie. Stay safe during this time. You mean a lot to me. : )
ReplyDeletelove your blog sister,
~Sheri
Just checking on you and Ted, and hoping all is well.
ReplyDeleteI've missed your blog updates :(
Hugs,
~Jo
Just stoping by to see how you all are doing. Had you on my mind a lot . Take care and prayers continue.
ReplyDeleteLike so many others, I, too, am checking to see if you are OK and hope you are both staying well. (((HUGS)))
ReplyDeleteI'm so sorry Ted isn't able to go on fishing trip but looking forward to next year for him. Oh wow, your eyes, I pray they will be better and you'll be able to get your surgery when needed.
ReplyDeleteI too am praying for y'all our country and the world. Thinking of you and missing you on here.
xoxo
Dolly
Hello! Stopped over from Nana Diana's blog - wishing you peace of mind and continued healing during these strange and scary times.
ReplyDeleteMe popping in again as I make my blog rounds. I do hope things are going better for you and yours.
ReplyDeleteSandy's Space
Making blog rounds again, so am leaving you a ((HUG)) in the hopes things are improving for you and yours.
ReplyDeleteSandy's Space
Sending my love and prayers to you both. xoxo Mildred
ReplyDeleteSusie, just checking in with you this Sunday morning. I turn to my friends now rather than church. I am so sorry for all the disappointments lately but like the dr. says, better more to come than just today. I hope you can get your eyes taken care of real soon. Try not to put that off, I have had eye problems in the past. Sorry to be so long this am, but just wanted you to know I think about you.
ReplyDeleteThis comment has been removed by the author.
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ReplyDelete