Saturday, June 1, 2019

Weekend Pass....

  Ted was allowed a weekend pass home. He was very happy about that. I see glimpses of energy here and there, it does last long at this time.
  This s the shuttle that comes for us at the apartment near the hospital and takes us to appointments.  Such a handy transportation.
  This is a poster at the bone marrow clinic in the hospital. The picture is of  Dr.Anand Tandra, Ted's doctor. He is one of four in this group. All are so smart and truly caring.
  When Ted has to take more pills than ever in his life and the pill holders are not near big enough. So I just used a big picnic paper plate to hold his meds for each day. There's morning, afternoon, evening and bedtime. I have read named the sections a couple times.  I will have to get a bigger holder. This is time consuming and that is because I double check . All the long twisted names of meds, confusing...and some drs. use the product name .
 Near the last two days of Ted's hospital stay after a big rain, there was a rainbow ...I took it as a sign of great hope.
 Then that evening there was a beautiful full moon. A day later, we  transferred to the out of hospital housing. So near by and helpful.  This is all paid for by donations. I think this will be one of our favorite charities.
 This is our other one, Cystic Fibrous Foundation. Today is a walk for our great grandson Luke. I was sure hoping to be able to join everyone, but it just didn't work out.  Luke's aunt made up T-shirts to help raise money. It did raise hundreds of dollars. How wonderful.  Please pray for the children.
   Ted will have two more appointments this coming week. Then I think we will be allowed to return home . He will have weekly appointments, then it will be monthly.  Ted has done amazingly well with this transplant. It is a long process ...lots of tests and meds. He has to shower daily , take care of his dental hygiene, and always be on the look out for anything different occurring with his body. The doctors are happy with the results. I am so thankful to all of you for prayers and well wishes. Thankful God has shown us mercy and love.  XO

47 comments:

  1. so happy to read good news! God is faithful.

    ReplyDelete
    Replies
    1. Terre, I am blessed...even when I am so frazzled I am tearing my hair out. I some times have to make myself stop and be grateful to the Lord. Bless you, xoxo, Susie

      Delete
  2. I am so happy for Ted AND for you. It will be good to get home-a bit scary maybe- but you will do fine.

    How wonderful that you have been able to stay close to the hospital in housing that is provided through donations. How great is that!

    Love to you and The Bald Eagle---that hat ain't fooling me! lol xo Diana

    ReplyDelete
    Replies
    1. Oh Diana, I can not wait to tell Ted that. You made him laugh about waxing his bald head in your text. He says this pass is good for him but it was crazy for me..well you know how that goes, right. Blessings to you dear friend, love, xoxo, Susie

      Delete
  3. Praise God and thank you, Jesus!! Another leg of this journey has happened and y'all are moving on through the last few. Challenging times and you have both been so strong. Thank God for the donations of housing and transportation. And sucha good group of doctors to take care of Ted.He may have to take medicine the rest of his life. They have pill boxes for four doses a day and holds a week. Filling the boxes is like rocket science. I can't talk or listen or be distracted in any way when I do ours.I've made a couple of mistakes over the years - like giving him a sleeping pill every morning for two weeks. And forgetting he gets Eliquis TWICE a day instead of just the morning!
    How exciting it will be to HOME! Normal routine has never looked so good!! Love you both and pray for you every single day!

    ReplyDelete
    Replies
    1. Linda, You are so right...I have never before longed for quiet and boring as much as I have the past 6-7 months. I do realize Ted's meds will be a big list...just hoping he will be able to help out. I forget my own meds while tending to his...so I am thankful I only have an aspirin and a cholesterol med daily...well that and vitamins. You know with STRESS , I will never be off those cholesterol meds. LOL. You would laugh..when preparing Ted's meds..they want the tiniest ones split in half at times. No not those big old honker pills the tiny ones. Which do not fair well. LOL
      Hope all is well in Texas, I have prayed for all in the wake of storms and floods. Not any fields have been planted here in central Indiana either. Blessings to all, be safe. love you guys so much .oxox, Susie

      Delete
  4. Oh my gosh I'm so glad! I keep you both in my prayers , you must be exhausted , the mental stress alone is just so heavy, take care my friend. You're on the homeward stretch!

    ReplyDelete
    Replies
    1. Thank you so much Laurie for that encouragement. I do need it at times. I have raved, ranted , cried ,and prayed. I know I should let it all go but the praying...at times it is just sooo much. Can not eat at the table because it becomes a pharmacy. LOL. Blessings to you and yours dear friend, xoxo, Susie

      Delete
  5. I only know you through your blog but this post made me cry with happiness. Also, we lost a little girl to CF and I thank those that continue to fight for a cure.

    ReplyDelete
    Replies
    1. Nonie, I pray everyday that God will help someone find a cure for C.F. Our Luke has bad days and good days with his disease. It is so hard to see him when it's a bad day. I will post some of the walks photos. Bless your heart, you are in my prayers. xoxo, Susie

      Delete
  6. I think you are right, the rainbow is a sign of hope and good things coming. Those pills look complicated to take at the correct times and your tray is helping. I am praying for full healing for Ted and calm for you.

    ReplyDelete
    Replies
    1. Thank you so much Terra. I am grateful for the prayers. I am praying all the time. I pray for Ted, for Luke, for people I see at the hospital and at the clinic.Blessings to you, xoxo, Susie

      Delete
  7. I love seeing Ted's joyful smile . . . Praise the Lord! God bless you both. I will continue to pray. You are both in my heart.
    Connie:)

    ReplyDelete
    Replies
    1. Thank you Connie. Even when we are going thru tough times ourselves, it's good to pray for others. I am so thankful for your prayers and you and Steve are in mine also. I praise God for all his mercy and love. I pray he shows both of you that great love. Blessings, xoxo, Susie

      Delete
  8. So glad to see that smile on Ted's face. It is almost over so hang in there. You will feel much better once you are in your own home. How wonderful to be provided with housing and transportation. God really takes care of us. The medication will eventually become routine. Joe takes 16 pills a day and at first it was overwhelming but that doesn't last forever. Still praying for you both.

    ReplyDelete
    Replies
    1. Thank you Kathy. I am so thankful for the prayers. I miss visiting everyone's blog and seeing what is going on in your worlds. This cancer battle is absolutely life absorbing. I do think ahead just a bit ,of the calmer days coming our way....so ready my friend. Hope you and Joe are doing well. Blessings to you both, xoxo, Susie

      Delete
  9. So glad to see this good news-God is so good! Will continue to pray for you both and for your great-grandson Luke.

    ReplyDelete
    Replies
    1. Thank you so much Jan. I am grateful for the prayers. I will tell Lukie about them. He is a charmer. Blessings to you, hope all is well. xoxo, Susie

      Delete
  10. Such good news! Ted is looking good. So glad that you have been sprung from the hospital and will soon be home again. Next time you will be able to march for CF. How wonderful that so much money has been raised. It’s important! Ongoing prayers...God is good. All the time.

    ReplyDelete
    Replies
    1. Thank you Vee. I am so thankful to all who pray for us. It has helped us get this far and I know it will get us thru to good health for Ted. He sure has given it a fight. God has been with each step. Blessings to you, xoxo, Susie

      Delete
  11. Brought tears to my eyes reading this. Such good news and so happy all is coming along as hoped for. God sure does carry us through some rough times but it sounds like you all are on the other side now. Stay strong sweet friend. You both will get through this cause you've come to far now. Prayers still going up. love you and sending lots of Big Hugs. xo

    ReplyDelete
    Replies
    1. Hi Susie, I am so grateful for your friendship and wonderful prayers. All the kind people praying for us has certainly helped. Ted tries to stay in good spirits. He is a bit low today. I just take his temperature and B.P. to see if he will be fine. That is stressful at times when we are so far from his drs. You are right we have made it this far, can't give up now. Blessings to you , I keep you in my prayers and thoughts always. Love you, xoxo, Susie

      Delete
  12. That is indeed all good news. So happy for both of you! -Jenn

    ReplyDelete
    Replies
    1. Thank you Jenn. We are both so thankful for the prayers and good wishes. It has given us uplifts thru this and lets us know we have caring people out there, we have not met...and that is a wonderful thing in life. Blessings, xoxo, Susie

      Delete
  13. Oh this is such good news! Ted is looking so good, Susie! I am keeping you both in my prayers! xoxo

    ReplyDelete
    Replies
    1. Linda, I am thankful for your prayers. It truly means so much to Ted and I to great people on our side throughout this battle. Blessings to you and yours, xoxo, Susie

      Delete
  14. The phrase that came to my mind this morning was, "Overwhelmed by God's mercy." I am thankful that God is carrying you and Ted and Luke.

    ReplyDelete
    Replies
    1. Thank you Karen. Some times I get in a tail spin...then I remember God is with me always. I am so blessed and thankful. Our Luke is growing and doing well. He does have low days...his parents are so alert and loving...for that I am thankful too. Blessings, xoxo, Susie

      Delete
  15. I am SO happy that Ted got to break out for the weekend. I know it made him happy! GREAT idea on the pill holder, brilliant! Enjoy your day dear friend, prayers continue for you all! HUGS!

    ReplyDelete
    Replies
    1. Thank you Theresa. Everyone's prayers are helping us. God hears them . We know even at the low times, it could be worse. So we thank God for his love and all of you for the prayers. Blessings to you and your family,hope your sister is much better now. xoxo, Susie

      Delete
  16. So happy for your good news. Going home will be wonderful. xo Laura

    ReplyDelete
    Replies
    1. Hi Laurie, I have missed you. Hope your new home is everything nice. Oh yes, Ted has been thrilled to be home. Praying this next week will be so good for him and the dr. will release him to come home. He will still have to travel back for weekly appointments. Then the appts will be cut back as time goes on . Blessings to you, xoxo, Susie

      Delete
  17. What a great smile! LOVE IT!!!!! That rainbow just gave me the Holy Bumps! Praying all the more for your sweet Ted. Hugs and blessings, Cindy

    ReplyDelete
  18. That's such a good photo of Ted! Give him hugs for me! I'm so glad he got to come home for a few days! Take care of yourself too my friend! Hugs, Diane

    ReplyDelete
  19. I'm glad Ted got a "vacation" and hopefully he'll be able to stay home for good soon. Loved the photo. Your plate idea is genius.

    ReplyDelete
  20. This is wonderful news. God is good and so thankful Ted got to have a visit home. Keeping my prayers going for you and Ted. Happy New Week.
    Kris

    ReplyDelete
  21. So pleased Ted is doing so well. It's a long road but but a worthwhile path. God bless!

    ReplyDelete
  22. Ted had such a big smile on his face. It warms my heart that both of you are doing well. Prayers and hugs my friend! Be blessed!

    ReplyDelete
  23. So happy to hear that He was able to get out. Keeping you in my prayers.

    ReplyDelete
  24. I'm so glad Ted got to come home for the weekend, Susie. What a lovely rainbow, and Yes, it's always a gift when we see a rainbow. And the moon you saw that evening is also pretty. That's wonderful that they participate in a walk for your grandson, Luke. I like the t-shirts they made. And they raised money for it too! Susie, it's so good to hear that Ted is doing well with the transplant. Still saying prayers for him and you, dear friend.

    love, ~Sheri

    ReplyDelete
  25. Susie: And he still has that big smile! He is amazing as you all are. That is really a mouth full of pills. It must be a job to keep them all straight. I am so happy that he is improving, Susie, and my thoughts and prayers are with you and your family, my friend..xxoJudy

    ReplyDelete
  26. Susie, I’m so glad to read this news. And that ted seems to be improving. Great idea for his pills!! I can’t imagine that many pills!!! Bless him and you!!!

    Love the rainbow!!

    Gert

    ReplyDelete
  27. Their are few people in the world like Luke's aunt who help others. Nice blog
    Asmi recent posted
    ramadan 2019

    ReplyDelete
  28. Oh Susie ~ So glad to catch up on what's been going on in your life and Ted's. You are so clever and organized with his pills. I had to take charge of Don's during his issues. I think he likes it and wants me to keep doing it!! Ours look small compared to Ted's. We just have AM and PM and one after dinner! Blessing on you. Will keep you in my prayers, and thanks for taking time to come by and visit me.

    ReplyDelete
  29. Just stopping in to see how y'all are doing. How was the weekend pass?? Hope it all went great!!

    ReplyDelete