This morning early , Ted drove us to Indy, for his drs' appt. They did lower one med and took away another. But then made appointments for everyday next week for more maintenance chemo. Now when Ted went into the hospital for his bone marrow transplant, they gave us a book ..a book that tells you what will take place. Big chemo, then radiation, then the bone marrow transplant. The more I read the book the scarier it seemed.
Now the doctor says Ted will get a week of maintenance chemo every month for a year. I have read that book over and over and no where in it does it mention this chemo maintenance. I don't mind saying it upsets me. I just get stressed every time we go there and knowing this will happen every month really makes me sick to my tummy. Ted is okay with it, what can we do...too far into this to quit .
I thank each and everyone of you for your prayers and good wishes. They have surely helped us get this far. God hears you and we are grateful. Bless you. XO
Prayers will continue for you and your Ted.
ReplyDeleteBlack Eyed Susans are my favorites!
Billie Jo, Once when we lived in town, I planted a black eyed susan by a down spout and that plant got so big and full of flowers...amazing. Thank you honey for the prayers. I feel I need them as badly as Ted at times. I do know we both appreciate them. Thank you , xoxo blessings, Susie
DeleteWell, golly, I’d be asking, especially since this treatment protocol is not in the book. If Ted is okay with it, it must mean that he is tolerating the chemo well.
ReplyDeleteYour flowers look beautiful. The lilies and brown-eyed susans have those August colors going on. My lilies will last into August this year. That’s a first.
Hi Vee, I hope you are having good days. Some times when I ask the dr things they say..Well in our studies we have found that this form of treatment works best. It ust kind of makes me nuts...and any more Vee, it doesn't take a lot to do that. :) I know I am more stressed some days than others. This was one of them. Oh Ted said he did not mind the shot in the tummy chemo...but it made his numbers lower and I am thinking if he doesn't get his numbers back up in between maintenance ...it just scares me. Bless you Vee, xoxo, Susie
DeleteYou have every right to be stressed. You have gone through a lot this past year. I always pray for Susie and Ted....putting you first because it is harder for you than it is for him. I get that. What a relief to think of 'normal' life once again....Y'all are young and another year will go by fast. Yes, I agree, ya'll are this far and you want to go the distance. Whatever it takes. Wish I were closer. I would give you a big hug and then take you to Horton's and buy you something special!
ReplyDeleteLinda, Thank you...you just put a big smile on my face. I think, I need a trip to Horton's. LOL. I keep thinking things will surely start on the good part of this journey. The part where Ted is healthy, with energy. Thank you so much for your prayers for us. We need them and truly appreciate them. Blessings, xoxo,love you, Susie
DeleteHave you specifically asked a doctor about this? Maybe just talking it through, and talking through your fears will help give you a better perspective. It might have been better if you hadn't been given the book in the first place because now when something is different than the book, it causes fear.
ReplyDeleteI really hope you can put some of your fears to rest, although I'm sure I'd be just like you! Hugs to the both of you! -Jenn
Jenn, You are right about that book. I did tell the Dr. it needed update for sure. They explain things by saing, Thru our research we have found that this or that works best. Then put it in the book !!!
DeleteJenn, I have to pray for strength all the time. Honestly at times I just have to cry it out. Then pray again lol. Blessings, xoxo, Susie
I'll be praying for you and Ted, hoping speedy recovery for Ted too ^^ When I get stressed out there are two things I reach out, my sketchbook and tea. I hope you can find something to do to relieve your stress.
ReplyDeleteKim, I have always said, "I will be bald soon, from tearing my hair out." LOL. I do pray and cry. Coming to visit blog family is a comfort to me too. Knowing others pray and care is good for our souls. Thank you so much for your prayers. Bless you, xoxo, Susie
DeleteI love seeing your view out your front porch. The flowers are beautiful.
ReplyDeleteEnjoy your day!
Thank you Sylvia. I hope you are getting to sit out on your porch. I have only sat out 3 times this summer. By the time it cools down, it will probably be too buggy. LOL. Blessings, xoxo, Susie
DeleteBeautiful flowers! I love seeing all of the blooms! Prayers continue as you and Ted go thru the maintenance. This has gotten me thru lots of trying times and I say it often... "This too shall pass" Have a blessed day dear friend, HUGS!
ReplyDeleteHi Theresa, I am going to practice your way...it would have to help. I start to pray and most times my prayers end up beginning ,"Please, please." and then it's more like a chant as my mind just can't seem to think straight. I write my prayers down lots of times. Thank you so much for your prayer, we are grateful. Blessings, xoxo, Susie
DeleteNice flowers
ReplyDeleteThankfully they are hardy and do not need much care. LOL. Bless you, xoxo, Susie
DeleteDear Susie,
ReplyDeleteI am so sorry to hear that he will be needing more chemo. I thought that this would be over for him after the transplant, too. I think of you each day and the two of you are in my prayers. The Lord knows your prayers even before you open your mouth, remember He has the ability to read your heart . . . He loves you and Ted and will walk this through with you both. That doesn't make it easy, but He is my comfort and I know that He is yours as well.
God bless you, sweet friend.
Connie :)
Thank you Connie. I pray for you and Steve too. We need to pray for each other. It helps me to pray for others. I know that Ted and I have had a rough few months...but so have many others. I know those better days have to be near. Blessings, xoxo, Love you, Susie
DeleteHey there Susie, just stopping to see how y'all are doing and how Ted is feeling. Those flowers are so pretty! I've had the orange lilies before and my Mom adored the big pink stargazer lilies, I think they are called? Love your driveway pictures....just looking out across and all you see are fields, right?---very pretty and peaceful.
ReplyDeleteDebbi, It is peaceful to be able to see all the fields of crops as they are now...so green and growing. I am thankful for these lilies...they are hardy and I do not have to fuss with them. Ted and I still have a ways to go on this journey, just knowing the good days have to be getting nearer. Blessings, xoxo, Susie
DeleteI thought this year we would have a nice garden because of all the rain, but the weather change and things are just stuggling. My heart and prayers go out to you. It is so hard on the person and the family going through a life crisis, but you can only take one day at a time and cope with that. I know it is hard, but just live in the moment. I will light a candle for you both.
ReplyDeleteThank you so much Betty. It's is hard to do a day at a time when the drs. tell you what you will be doing everyday for a week, every month. I try to find just a bit of joy when I can. Some times Ted and I laugh about certain things we had done long ago and we can still laugh . Blessings, xoxo, Susie
DeleteI had maintenance for a year after my cancer surgery so I don't think it's anything to worry about. It seems to be what is done and better the doctor sees him each month.
ReplyDeleteYour flowers are gorgeous! I love how colorful your area is. Here it's just green.
Thank you Kathy, It's good to hear from others who have gone thru things that we truly don't understand fully. I just wish the drs. could work well with drs. that are closer to our hometown. So we would not have to drive over a 100 miles every day. Kathy, if it were not for the lilies and clematis I would not have had much color this year...as I did not put out any annuals. Blessings, xoxo, Susie
DeleteHi Susie! I'm so sorry your husband is having to go through this and will be praying all will go well for him. Your flowers are so pretty and since we've moved back to Texas - it's rained and rained and rained. Thank you for popping in to see me.
ReplyDeleteBe a sweetie,
Shelia ;)
Thank you Shelia. We appreciate your prayers. They do help us. I think Texas has heavy rains for two years now. Plus those over 100 temps, wow. Stay cool and take care, xoxo,blessings, Susie
DeleteSusie, thanks for your visit and I would imagine that each patient is a little different so probably plans change along the way. Sounds like he is getting good and thorough care and that he is holding up. He must be so strong and that's what is needed to get through it all and come out much better on the other side. Take care of yourself. Sometimes that is hard to remember my friend..Happy Wednesday..xxoJudy
ReplyDeleteJudy, You are so right. I am just going to have to see if I can get others to help, so I can get some medical things done for myself. Ted was a strong man when he was diagnosed, that is why he survived the two big rounds of Chemo in the beginning. There's four drs. in the clinic and all have seen Ted and they say basically the same thing. Blessings to you, xoxo, Susie
DeleteSusie, just wanted to thank you for your visit. I don't know what you erased, but you said it beautifully. Thanks so much for taking the time with all you have going on. I wish I was close to you..xxoJudy
DeleteThat is a lot to handle, Susie! I will keep you both in my prayers... thanks for popping over to see my daughter Shannon's baby shower. You have much on your plate - blessings your way!
ReplyDeleteThank you Carrie, i appreciate your prayers. I love seeing your blog. Blessings to all of you, xoxo, Susie
Deleteit must be impossible not to worry, but try not to, they know what he needs and it is different for everyone!! your flowers are beautiful...we got a big storm last night, a lot of rain and thunder like i have never heard before. i like a good storm, so i was happy!!
ReplyDeletewarm thoughts and prayers for both of you!!
Debbie, One thing about storms they make the air so fresh the next day. Ted is so close to his 100th day mark. Hooray for that. I felt like it was 200 days off when they first said that. Blessings to you, xoxo, Susie
DeleteHello Dear Friend,
ReplyDeleteI can understand why you would be upset. Praying for clear communication from the doctors and nurses.
Your flowers are beautiful.
Praying for you all!
Thank you Carla for your prayers. I truly appreciate each one. Makes me feel stronger. Ted will be having his chemo maintenance starting Monday. Wish that Hospital was easier to get to. :( Blessings to you and yours, xoxo, Susie
DeleteSusie, love the flowers. You are on our weekly prayer list to lift up. Ted and you and your family. Hugs and blessings, Cindy
ReplyDeleteThank you so very much Cindy. It is so good to be in your prayers. It truly helps us and we are grateful. Blessings to you, xoxo, Susie
DeleteOh Susie, I'm sorry to hear Ted has to have more treatments every month. And I'm sorry you didn't know about it either. Your flowers are growing beautifully. I'm glad you got some rain! You can sure see how much it rained on your driveway picture. Always saying a prayer for you both, and wishing you some peaceful days in this month of August, Susie.
ReplyDelete~Sheri
Thank you my sweet friend. Sheri I am thankful for all the prayers. Everyone has been so kind to pray for us. We had so much rain and now it's so dry, the grass is crispy in places. LOL. Blessings to you and all your family. xoxo,love you, Susie
DeleteHi Susie, rain does help those flowers. How lovely they look. Prayers and healing thoughts for Ted as he navigates through treatments. Have a good weekend. xo
ReplyDeleteThank you so much LInda. I am so grateful for your prayers. Sending some to you too. Bless you, xoxo, Susie
DeletePrayers continue for you both during this difficult journey. I enjoyed your flower photos and the rain on the driveway looks so welcome.
ReplyDeleteThank you Laurel. I so appreciate your prayers for Ted and I. They have power. We have had no rain since and the grass is browning. :( Blessings, xoxo, Susie
DeleteOh very cute flowers darling
ReplyDeletexx
thank you miss. Blessings, xoxo, Susie
DeleteHello Susie~you have a lovely place here and I'm happily following along with you.
ReplyDeleteI love that you love God! ❤
My you have some gorgeous flowers!
My prayers will be with your Ted in his journey with treatments, and for you as well. ♡
Thank you so much Debbie. I truly appreciate your prayers. We need them everyday.
DeleteI will be getting some fall flowers soon. As I have some mums in the front flowerbed. Blessings to you, xoxo, Susie
Hi Susie. Loved seeing your pretty flowers. We have not had any rain for over a week. We could use a little. Have you thought about getting another opinion about the maintenance chemo? It seems to make more sense to continue to monitor and if any thing looks like it is happening again then do maintenance chemo. Chemo as you both have found is so harsh on all things not just cancer. I am praying for you and Ted.
ReplyDeletexoxo
Kris, I am not sure Ted will get chemo as much as they said. He had an IV chemo yesterday. Thursday is his 100th day. I thought it would never come and here it is. A reason to breathe. The dr did say they would work with Ted cancer dr and see about having his maintenance treatments closer to home. Hooray for that. Ted has amazed all the bone marrow drs. So far he has done very well with all his meds and treatments. He was starting to show signs of energy lately. He is loving driving everywhere again. Blessings to you Kris and thanks so much for your prayers. xoxo,love you, Susie
DeleteHey Susie, I'm so sorry. That is a lot to deal with every day. I too will remember you both in my prayers. Your lilies are so pretty. I plan to move the lilies I planted last year. We just do not have enough sun in our yard for them to do good. Love, Henny
ReplyDeleteHi Henny, Thank you so much for the prayers. They are so welcomed here. Some times I think the lilies are taking over. LOL. Blessings, xoxo, Susie
DeleteI guess you are right, Susie..you are in it for the long haul. I think they don't tell us everything up front because it's too overwhelming to take it all in, all at once. So we get information as needed. Being the support person is as nerve wracking as being the patient it seems sometimes. I keep praying for peace that transcends all understanding for you all. Sending love. xo
ReplyDeleteThank you so much Debbie. We truly appreciate all the prayers and kind words. Ted is doing great , the drs. said this week. They are going to arrange for him to get chemo maintenance closer to where we live. That will help so much. It's been rough this whole journey, yet I see God's hand involved , his mercy.I think it's helps with all the prayers being said for us. :):) Blessings to you, hope you are doing well. love you and miss visiting , xoxo, Susie
DeleteSusie,
ReplyDeleteSending prayers to you and your family as your husband fights hard against cancer...Believe me, I know how hard this is...
Thanks so much for stopping by and for your kind words in regards to the passing of my dear nephew. It is greatly appreciated...
Hugs,
Debbie
Debbie, You are so welcome. I am grateful for your prayers for Ted and I. I think God likes when we pray for one another. I know it has helped us so much. Blessings to you, xoxo, Susie
DeleteI always keep Ted in my thoughts and prayers, cancer is such a fickle disease, but hopefully, other than the maintenance, it's a thing of the past …
ReplyDeleteYour flowers are still beautiful, despite the lack of rain, we've been getting pop up showers and storms every evening, every little bit helps !
Hugs,
~Jo
Thank you Jo. Ted got good reports this week as he was getting his maintenance chemo. I know everyone's wonderful heartfelt prayers have helped us. Thank you. Good old lilies...so hardy. Blessings, xoxo, Susie
DeleteHi Susie! Thank you for popping in to see me and I hope you're doing well.
ReplyDeleteBe a sweetie,
Shelia ;)
Thank you Shelia, I have missed visiting everyone as often as I would like. Glad you are enjoying your home and decorating it. I love seeing the decorations. Blessings, xoxo, Susie
DeleteStopping by to say I continue to pray for you and Ted. God bless you and I hope you both enjoy the weekend.
ReplyDeleteLaurel, Thank you so very much. Today was a good day at the clinic. Ted got his last chemo Iv for this weeks maintenance. They took his port out and said he did not have to come back till two weeks from now. He can eat what he wants and go where he wants...but he can not mow or be out while someone is , or be in dust and dirt, not attics , basement or crawl spaces...too many molds and fungus possibly.This is day 100 of his bone marrow transplant. Hooray. Blessings to you, xoxo, Susie
Delete